Is It Epstein-Barr Virus Reactivation?

Epstein-Barr virus reactivation is becoming more and more prevalent, and maybe the reason your health has declined or why feel so tired all time. Here’s the full story of how I began my journey to learn about Epstein-Barr (EBV) reactivation.

Epstein-Barr Virus Reactivation

(Quickly, this post has gone a bit viral, and I want to say thank you for the overwhelming response to this EBV story! I recommend reading all posts in this EBV series after reading this one, and be sure to get on my email list below the post for future updates and recommendations.)

Is It Epstein-Barr Virus Reactivation?

If you had a terrible case of mononucleosis (mono) when you were a child or teen (like I did), or if you often feel low in energy with no explanation, then this post is especially for you.

Before I get into the details of the Epstein-Barr Virus (EBV) reactivation, discovery, testing, and treatments, I want to mention that I’ve had this post in draft for months. When I sat down to finish this series, I just stared at the screen for an hour.

I took some time to reflect on why this post is so damn hard to write, and here’s what came to me: there is still a lot of confusion in both the modern and alternative medicine worlds about the testing, chronic effects, and treatments for EBV. I’ve worked with two talented naturopaths and discussed this with multiple functional medicine experts. They all tell me the same thing: there just isn’t a lot of information or standardized tests yet to understand the virus. I’m currently working with a medical doctor who specializes in integrative and functional medicine, and we are still working on treatments and understanding the virus.

With that, I’m going to share my story in the hopes that it can help you—in case you also experience low thyroid levels, an autoimmune condition, lethargy, exhaustion, or days when you just plain don’t feel great. 

One last note. This post is much longer than most of my blog posts, but I wanted to give you the full story about Epstein-Barr Virus Reactivation. So grab a cuppa tea and cozy up—you’re about to learn why you’ve been so tired with no explanation.

The Backstory

A few years ago, I was diagnosed with reactivated (active?) Epstein-Barr (also known as Epstein-Barr Virus Reactivation). I finally had an explanation—or at least the start of an explanation—of why my thyroid levels are so low and why I feel so tired all the time, despite eating well, exercising, and taking pretty darn good care of myself and my health.

My diagnosis came after I read The Medical Medium and requested an Epstein-Barr test from my naturopath. More on the book and testing in a minute. But first, you need to hear the (waaay) backstory in case something similar has happened to you.

The Way Backstory

I had strep throat a lot as a kid. It started to get really bad in my early teens, and it seemed like I was in the walk-in clinic every other month being put on another round of antibiotics to clear up the strep. (The dozens of rounds of antibiotics caused an entirely different issue—an unhealthy gut bacteria balance that I’ve been able to clear up with real food, avoiding processed foods, and consuming fermented foods and probiotics, but we’ll talk about that in another post.)

My mom grew weary of the cycles of strep and asked the doctors if there was anything we could do. They suggested having my tonsils out. Fifteen is old to have tonsil surgery, but after consulting with different people, my parents decided it was the right decision. I had my tonsils out, which really cleared up the strep, but I never fully recovered from the surgery. Between the hard detox off the anesthesia and the wicked case of mono I developed, I just never really felt 100% again.

Side note: Much later on, while reading The Medical Medium, he talks about strep being a co-infection to mononucleosis, which made SO much sense in this story. I had no idea that was the case 20 years ago, and neither did any doctor I had ever encountered.

Back to the mono. In the six months after the tonsillectomy, I was so tired I could barely get out of bed. It’s normal for a teenager to sleep a lot, but it was getting worse by the day. I was an active dancer and cheerleader and at a healthy weight. I ate pretty well for what we knew back then, but despite being seemingly healthy, I was exhausted all. the. time. My mom took me back to the doctor, and one test later, it was clear that I had mono. Mono is really common amongst teens, so they just told me to rest and that it would pass.

I slowly recovered from the acute mono, as most teens do, but just like when I had the surgery, I never felt completely better.

Another side note: I wish I had a cool story about getting mono, but I was such a prude that it wasn’t even from kissing cute boys under the bleachers or anything like that. I probably got it from sharing pop (yes, we still call soda “pop” in the northwest) with friends. [And eeew, I used to drink a lot of pop in the days before I was a health coach.] It doesn’t really matter how I got mono, what matters is that I was so sick I missed almost an entire semester of my junior year of high school. I started to recover slowly but surely, but never regained full steam.

The next year, a week before graduation, I’m climbing the stairs at school and suddenly have to sit down. I’m winded—a strange phenomenon for a teen who was a dancer her entire life. A friend walked me to the nurse’s office and I ended up at the doctor that day. A blood panel would reveal that my thyroid levels were so low that I needed to get on medication that very same night. Again, I’m only 17 years old when this happens.

Over the next 10 or so years, I popped that thyroid medication every morning and didn’t think much of it. Except, just like before, I never really felt 100% better. A little, sure. But something always felt off. Between bottomed-out energy levels and a few pounds that I just couldn’t seem to shake, I lived my way into my thirties figuring I’d just have to accept the fate that for some reason, my thyroid quit working.

Getting Tested for Reactivated Epstein-Barr

But then I discovered the idea of Epstein-Barr Virus Reactivation.

I had my annual physical coming up with my naturopath to have my thyroid medication renewed, and in our meeting, I mentioned that I had just read a book that hypothesized that the virus could be the root cause of my thyroid issues. I knew that a traditional western medicine doctor would have thought I was looney for even asking, but I knew my naturopathic doctor would at least hear me out.

Doctor: “Yes, I’ve been hearing this a lot lately, so I read the book. It’s not that it’s unfounded, but you aren’t presenting with symptoms of active or reactivated Epstein-Barr.”

Me: “I totally hear you, but is it easy to test for? Just for peace of mind?” I said, as she did the thing where doctors take notes about you that feel like complete and utter judgment on a page.

Doctor:Well, there isn’t standardized testing, but we can check the level of antibodies. One will always show positive for a past infection, but the other will indicate a recent infection. And if that second one is high, we can suspect reactivation because your body has recently been fighting the virus and we know you had mono 17 years ago. But just so you know, I’m writing in my notes that you do not present with [currently accepted] symptoms of Chronic Epstein-Barr.”

Ha! There was the judgy note. But I didn’t mind; she was just doing her job. She’s a great doctor and a really good person.

Me: “How much does it cost?”

Doctor: “$40.”

Me: Feeling like it was a no-brainer just for the reassurance (and to appease my curiosity), I said, “Great, let’s do it!”

10 days later, she called me and said, “Oh my God, you were right—the antibodies that show recent infection are sky-high.”

I felt so validated—finally!—that I was NOT crazy and making it up. All of my other lab tests except my thyroid panel were normal. Quite a few doctors had told me that there was absolutely nothing wrong with me. But alas, I’d been walking around with a version of reactivated Epstein-Barr, which for me, felt like another case of mono, which comes along with a whole host of other issues.

There are not any (NONE, ZIP, ZERO) treatments for EBV in the current western medicine landscape. Crazy, right?!

Some practitioners don’t even recognize it (along with Lyme) as a disease, which is so sad, because it affects so many people. Once I started researching alternative treatments to calm the virus, everything changed. I felt better than I had in years after having a blood ozone treatment (Major Autohemotherapy) and incorporating a few natural antivirals into my routine. I’ll write about all of those things in my next blog post, so stay tuned.

Another side note: I also want to mention that the term “reactivated Epstein-Barr” isn’t really standardized either and can mean different things to different practitioners. Some will use the term “chronic EBV” or “chronic reactivated EBV.” That’s how little research is available on this topic. I’m using this term here because it seems to explain best what I’m talking about.

The Medical Medium Book (Truth, or Complete Nonsense?)

I have to admit, reading The Medical Medium (Hay House, 2015) was a big leap of faith for me. I believe in Spirit, but I also believe in science. I didn’t take the leap lightly, so I would invite you to read the entire book and see for yourself what you think. I almost quit after the second chapter, but I’m glad I didn’t.

Regardless of if you believe in his backstory, the information in that book is having a dramatic effect on the way western medical doctors (and alternative practitioners alike) are looking at autoimmune disease. Additionally, according to one of my naturopaths, this book is not the first time someone has hypothesized that autoimmune conditions can in fact be caused by chronic viruses (So maybe they’re onto something!).

Emerging Info about Epstein-Barr Virus Reactivation

In case you’re curious and think you might have a similar situation, here are some quick notes.

According to the National Institute of Health, the Epstein-Barr Virus is a “ubiquitous human lymphotropic herpesvirus,” meaning it: is a member of the herpes family of viruses, can cause lymphoma-type cancers, and is present in just about everyone. About 95% of the population carries the virus. Once infected with EBV, you carry the virus for the rest of your life.

EBV isn’t anything new. But, as I stated above, modern medicine barely understands it. Western medicine says that we all have it, that some of us get mononucleosis from it, and that it then lives in us, dormant, forever. Modern thought and progressive researchers are now starting to understand that it can reactivate and/or cause a whole host of chronic issues, including chronic fatigue, fibromyalgia, and even some types of cancers.

Additionally, some researchers and health experts now believe that chronic active viral infections, such as EBV, may be the root cause of autoimmune conditions issues such as Hashimoto’s and lupus, and may be responsible for chronic illnesses like MS and Lyme disease. EBV can also be what’s considered a co-infection to Lyme disease.

One theory is that EBV becomes deeply embedded in your organ tissue over time. Then as your immune system tries to fight the virus, it appears to be attacking the organ.

Hello misdiagnosed autoimmune conditions. Which is what happened to me.

I had very slightly elevated thyroid antibodies at one point and was diagnosed with Hashimoto’s Thyroiditis, an autoimmune thyroid condition. I definitely had very low thyroid levels, but the idea of an autoimmune condition didn’t sit well with me. Why would my body attack itself? And none of the Hashimoto’s protocols or natural treatments made me feel any different. When I learned that my EBV antibodies were sky-high, it all made sense.

I didn’t have Hashimoto’s Thyroiditis. I had an overzealous Epstein-Barr infection still lingering from mono 17 years previously.

My Current Epstein-Barr Reactivation Testing & Treatment

I’ve felt great for the last few years, but I’ve been extra-tired recently. I blamed it on my schedule, travel, and work (that I love!), but over the past month, I knew something was off.

A blood test in June showed very elevated EBV antibodies again (the type that shows a recent infection). There are only a few tests that even look for antibodies, and like I mentioned above, 95% of the population will show some sort of antibodies since we’re all infected with the virus. But if your antibodies pass a certain threshold, your body is actively trying to fight the virus (the reference range is below 9; mine was over 40).

Here’s where it gets tricky: there isn’t a standardized test for this. Different labs show different results. Some show a pass/fail/yes/no result, and some show a level-based result. I’ve written more about the EBV tests I’ve had and show you examples in my next post, because this blog post is already twice as long as most of my posts. 😉

Remember, healing is never linear. You are your own best health advocate. We must stay vigilant and pay attention to how we feel in our bodies, and advocate for proper testing and treatment if something feels off.

EBV Healing

Don’t feel discouraged if this post speaks to you! There are steps you can take. I’ll post more over the next few weeks with the details about testing and alternative treatments for EBV. Hang in there!

If you’ve been feeling really off, tired or sluggish, or have uncontrollable thyroid issues, consider working with a naturopath for an EBV test. Again, more on this in the next post.

How to Take Action:

1. Buy (or borrow) a copy and read The Medical Medium.

2. Leave a comment below and let us know if you’ve experienced similar issues, and/or if you suspect EBV is causing issues for you, too (or if you’ve already tested and gotten an answer!).

3. Stay on my email list for future updates, real food recipes, and healthy living inspiration. I share weekly-ish recipes, tips, and notes with my VIP email community. You can subscribe to my newsletter below this post to get your free recipe ebook and special updates.

4. Be gentle with yourself. 🙂 And read the next posts in this series with tons more information.

Read The Next Posts In This Series:


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  1. Sarah says:

    Does anyone get excessively dehydrated and constantly thirsty with their recurring EBV?

    I had glandular fever at 16, I’m now 38. At the time I was drinking so much water my mum was a bit alarmed. And now whenever I get run down I get a sore throat, tired, and often incredibly thirsty. Today I have drank 7 pints of water. I also seem to naturally need a lot more water than those around me. I’m just wondering if this is a symptom. I’m also wondering if I should give up drinking as everytime I do it seems to knock my immune system and create this fatigue and horrible feeling.

  2. Michelle Erickson says:

    Thank you for posting this! I was just diagnosed with EBV and I’m beyond frustrated. I’m exhausted and nothing has worked to combat my symptoms.

  3. Kaitlyn Von behren says:

    WOW! Thank you for sharing this and making me not feel crazy! I’ve had mini 3 different times and I’m 28 – I’ve been feeling lethargic and almost like it’s reactivating again and I’ve been so nervous to mention or see a doctor for it because so often everyone says it’s a one time only thing. Thanks for this info and validation!

  4. Erica says:

    I sympathize with your situation and it is extraordinarily similar to mine. However, as an adult I had a severe illness appear seemingly out of nowhere at a point in my life where it seemed I was the healthiest I had ever been. I was covered in an ever worsening rash that looked and felt like chemical burns covering most of my body. After years of having to advocate for myself with countless specialties, I found a doctor that practiced integrative medicine. He identified the correlation to my two prior EBV diagnosis as a late teen and I was well on my way to getting healthy again. You mentioned in your blog that there is no treatment for EBV but I have found that not to be the case. After receiving Ten-pass ozone treatment on a consistent basis my EBV has come under control and I have my life back. In fact within 8 treatments I looked and felt like a new person. The treatment has been used for years in Europe and is now more common in Canada, but the US has a number of barriers to accessing the treatment, mostly because it cannot be patented and thus is not lucrative. But I cannot stress enough that without it and an educated doctor with awareness about the nature of EBV I would likely still be living in horrific pain from my illness.

  5. Stephanie says:

    Has anyone had ear issues and dizziness? After a friend sent me something from the medical medium I’m thinking reactivated ebv could be my issue. Been battling constant strep for the last 5 years and had mono as well. Most recent strep was back to back cases in October and November of 2021. Then in January I suddenly became “dizzy” when driving . My life has been put on hold for nearly 3 months with no answer. Ct scans , blood work normal . ENT exams came back normal and eye doctor said it’s not binocular vision dysfunction. I wasn’t tested for ebv though. I’m at a loss but it seems from these comments that all present differently . Any help would be appreciated .

  6. Jen says:

    Hi! Lucky me, I’ve had mono twice, once in high school (also from sharing a drink?) and most recently 12 years ago. They say you only get it once, but boy were they wrong, my throat was so inflamed they brought all the doctors in to see it. Sigh.. I also had lymes in middle school.
    I was so tired in my early 30’s I had a asleep test done, I was Told I fall into my REM cycle too fast, so I was diagnosed with hypersomnia and narcolepsy without cataplexy (I don’t pass out from emotional episodes, phew!)
    But I always wonder if my daily meds for Narcolepsy is really just me attempting the manage my EBV? I have good days and bad days, but most the time I’d rather just sleep it off. Jen in VA

  7. Dave says:

    Hi Elizabeth,
    This is interesting since my wife recently had some bio scan done and it showed she had traces of EBV in her system. She always feels tired, and has a low appetite, and at the end of 2020 got diagnosed with non-hodgkins Lymphoma. Any thoughts on what can help her feeling better?

  8. Katherine A. says:

    Thanks for writing this. I haven’t been really well since I had mono at 17 either. And I too got it from sharing a drink!

  9. Nicci says:

    Hello! Have you looked into DesBio? They have a treatment for mono!

  10. JANE BROADHEAD says:

    I am from the UK and I know I have reactivated EBV as I have all the symptoms. I need to know which test to ask for as my GP says there isn’t one!!!! I recently had a 3rd molar crown extracted and became unwell with EBV since the stitches were removed. -As soon as the tooth came away my tonsils were up and I felt as though I had tonsillitis. I had PRF treatment in the cavity. Bloods show elvevated liver enzyme GP unconcerned even though marked abnormal level 49!! Also queries Antibody test ?!!

  11. Christie Pearson says:

    My son, 14 was diagnosed with covid and mono in Oct 2021. He was hospitalized with seeping tonsils. He was negative for strep at that time. And his throat and a fever were his only symptoms. He was given monoclonal antibodies for the covid and and antibiotic for his throat which ruptured on the first night and gave him immediate relief, otherwise they were going to drain it the next day. He was in there 2 1/2 days and recovered very quickly. Never really had fatigue or problems with his spleen.
    Well today he told me his throat has been seeping and sore for the last few days. Took him to urgent care they said he still has EBV and they suggested we get ahold of a surgeon to have is tonsils removed.
    So I’m so glad I came across your story. Just ordered Medical Medium (such a fan of all of these book, liver rescue is full of wonderful info)

  12. Jennifer Hunter says:

    Oh my goodness. I am sad/glad there are others out there like me. I had a severe case of mono with a strep infection over 40 years ago. I spent many years telling my Doctors that “if it wasn’t for the fact that you can only get mono once, I would swear that is what is wrong with me”. My current physician did a test about 3 years ago and confirmed I had recently fought off the Epstein-Barr virus. Fast forward to 2 months ago, my regular labs (which includes a test to check my EBV, as requested by my doc) came back with a raging case of Mono. And for me these past two months have been the worst episode ever. Thank you for sharing this blog. It is good to know I am not alone.

  13. Sharon says:


  14. Kristin White says:

    My 16 yo daughter was diagnosed today with Mono. She had strep throat a couple of times when she was young and would inevitably get scarlet fever afterwards. She’s in really bad shape and has been for the past 5 days. Reading about how it can affect her future here scares the hell out of me. I feel compelled to learn as much as I can and I will be listening to the medical medium. Being a very spiritual person already it sounds right up my alley. I appreciate your blog very much and will be following you. I hope to find you on Facebook so I can stay up to date and connect with others ad well. Thank you very much. Please keep my daughter in your prayers 🙏

  15. JEANNE TAYLOR says:

    OMG! I’m not cray cray! I had strep as child a lot my freshman yr got mono turned into infectious hepatitis was admitted and quarantined in children’s hosp missed my whole freshman year young adult diagnosed with EBV then lupus now RA and a heart condition I’m 60 and I’ve been sick my whole life I hope I’m not in my next life!

  16. Anne says:

    Hey there,

    I can relate to this and would like to share my story to see if anyone had similar symptoms. I am 30 years old and had an awful year. I am feeling sick since 13 months including tickle/soreness on tongue, neck glands, throat and stomach. My hair became very thin and I’ve lost a lot of them. I have very low T-cell, positive ANA, slightly enlarged spleen, extreme tiredness and coughing from the stomach. Some days I feel better, some days worst. Its like something is getting activated from my tongue to my stomach.

    I had a full body MRI, gastroscopy, autoimmune test, loads of blood tests including tropical medicine, a bone marrow biopsy and genetic testing on the way. One of my blood test showed reactivation of EBV and shingles but the doctor didn’t think it was any of that. I started taking monolaurin and celery juice and felt so much better for a few months. The symptoms have reappeared unfortunately and I feel desperate as I can’t do anything else.

    I can’t figure out what it is, and if that’s really EBV as it doesn’t look like the symptoms. I will be seeing a naturopath soon, but I feel absolutely confused on how to help myself.

    If someone share a similar story with the same symptoms, please reach out :))


  17. Kristi says:

    Wow. I feel like I found my people. Your story mirrors mine. Chronic strep-throat and tonsillitis as a child and into adulthood. Had my tonsils removed at 32 (2 years ago). Missed a semester of 11th grade due to mono and have battled the symptoms of EBV for 17 years having no idea that’s what I was up against. Twice in my adulthood I began struggling with nocturnal panic attacks and depersonalization/detachment seemingly out of nowhere. Both times labs were done because I was fearful I was dying of a disease — they both showed elevated EBV numbers. I am currently walking through another season of these crazy symptoms and anxiety issues and my level is 220. It can make a person feel like they’re losing touch with reality — going crazy! It seems like we are all in this together. I am looking forward to reading your other posts and incorporating what I learn into my appointments with my functional/integrative medicine doctor who I recently started working with. Anyone here been told they had a parasite that was allowing the virus to live and release at any given time?

    • Lauren says:

      Yes! So it’s been a little over a year for me and I’ve slowly gotten better but my anxiety is still not down enough. It started after a period of intense stress and exploded out of nowhere. I tested my levels and I was right over 200 but haven’t tested them since. Recently, I’ve revisited this idea that my anxiety could be because of ebv and here I am. Yesterday I saw a different naturopath, who is also an energy healer & intuitive, and she is very adamant that parasites are our biggest issues. She ordered me a few supplements but I’m honestly a little worried to try them. Mostly because over the last few years, I’ve been sensitive to things. SSRIs gave me a horrible reaction, l-theanine made me feel dizzy, probiotics made me feel shaky. Idk if it’s psycho somatic bc it still freaks me out. I do acupuncture twice a month and that helps, she’s suspected ebv from the start. It’s just hard for me to tell if the anxiety or the ebv came first. All I know is I’d like to return to the version of me who didn’t have constant anxiety or random spells of feeling off balance & tons of muscle tension.

  18. Megan K. says:

    My junior year of high school, I had acute mono for 8 whole months. 3 months were spent on bed rest. Few months after getting past the big major, acute hump, my gallbladder simply quit working. Just lost all function… had to get it removed. Not much longer afterwards, I got incredibly sick and was diagnosed with lymphocytic colitis – autoimmune disease. And here recently, I have been diagnosed with dysautonomia and inappropriate sinus tachycardia. Ever since I was first sick, I have never felt the same. My body doesn’t feel like its own and I am constantly feeling like my body is fighting against me. I have always been a healthy individual. Since I was first sick, I would tell my mom, “I’m having a mono day”, “This past week has been all mono days.” That was because I would simply have days where I felt like I had mono all over again. A while ago my mom brought up the chronic EBV. I brushed it away because I thought there was no way, and that if I went to my doctor about that I would be disregarded. However, recently I have not been able to ignore how my body is making me feel. I came across this post and it has changed me. I don’t feel crazy, I don’t feel alone. I am now going to reach out to a specialized doctor who might be able to help me with all of this and run tests. As a 20-year-old nursing student, I refuse to accept that I will feel this sick for the rest of my life. I can’t wait to follow your blog for this lifestyle change!

    • Krissi says:

      EBV has a relation to POTS (Dysautonomia) . My symptoms of POTS skyrocketed when I got chronic EBV. I had no idea it was a thing. I felt so damn bad, I couldn’t function. I grew up with tonsillitis and strep. Sister too and had her tonsils out. My 23 year old has the same issue now. Her tonsils STAY swollen.

  19. Rebecca says:

    In 2018 I was tested for Epstein bar along with a bunch of other tests I won’t going to details why. I didn’t read it came back negative. My doctor retested me just to be sure and it came back -1/ second time. Skip all the way to 2021 where I was feeling lethargic exhausted and tired all the time. Thinking I had Covid I got tested for that first and was negative. After being hospitalized three separate times for symptoms my doctor couldn’t figure out. I was sent to a hematologist.
    The hematologist ran all kinds of tests including a PET Scan. Finally diagnosing me with a primary Epstein-Barr virus infection. this exhaustion is unbelievable. I did not get a rash I did not get swollen lymph nodes in my throat or a fever. I’m just completely exhausted. And I work out on a regular basis which now I cannot.
    I just want this to go away I don’t like how I feel. I eat healthy all natural foods I’m so careful what I put into my body. I don’t even know how long this is going to last. I don’t usually get sick at all I’ve only had the flu once in my life. Now I have a cyst on my spleen from nowhere. It is non-malignant thank goodness. It is a shame they do not have a vaccine or a cure for this

  20. sheri says:

    my test was 715 –it said anything over 30 was postive. Prescribed valacyclovir- will take and see.

  21. Melissa says:

    Oh my! This was like reading my life in print. I had strep throat several times a year for years and at 17yo was diagnosed with strep and mono at the same time. Six mo later when no better, I was told I may have chronic mono. The next 16 years I dragged my way through life. Chronic fatigue syndrome is what they called it. I was ALWAYS so tired. At 33yo, I was diagnosed with Hashimoto and chronic mono by a hematologist. Since then I have developed other autoimmune disorders and still very easily fatigued at 51yo. I am always looking for ways to feel to feel better. or improve the chronic fatigue that comes with it all.
    Thank you for sharing your story!

  22. Becky Wells says:

    Can someone contact me??I have hashimotos and active EBV . It never occurred to me that I might not actually have hashimotos and the EBV might be causing the issues I am experiencing. You say your number was over 40 – mine is WAY higher than that. However, my functional dr doesnt want to treat the EBV until we tackle inflammation , and I am wanting a second opinion.

  23. Anton Meyer says:

    Interesting discussion. I personally think bloodwork/bloodtests have failed most chronically ill people. There is so many false negatives etc.

    An trained immunologist should just stain your bloodsmear and look for Atypical or Reactive Lymphocytes under the microscope, but this is a old school method rearly used anymore.

    Atypical lymphocytes simply mean u have a reactivated viral infection mostly ebv or cmv.

  24. Julie Harris says:


    Thank you for this!

    My story parallels yours exactly—from the chronic strep throat as a child to mono at 17, to being diagnosed with hashimoto’s as an adult.

    Last week I went to do the dr and asked for a full panel blood draw—everything and anything that might explain the chronic fatigue and joint pain I’ve had for the last 6 years. My EBV level was 365!! My Dr insists that I must have recently had mono. That doesn’t resonate with me.

    I’m going to check out Medical Medium and subscribe to your email. I’m so grateful for all your insight!

  25. Jenna Morton says:

    I had a 3 month long extreme case of mononucleosis at age 14, hospitalized twice. I had been a very healthy kid, and after mono i was never right again. At 23 years old i was told i had a severely enlarged liver of 21cm which they accused me of being an alcoholic because my father was. I knew they were wrong based on my few drinks a week but i never had another drink again as i wanted to preserve liver function. At 29 now i have spent the last 10 months suffering autoimmune symptoms, hives, angioedema, GI bleeding, confusion, numbness, chest pain. I am quite curious if this is related to my Mono from 15 years ago, or if i am simply developing autoimmunity due to the fact that my grandmother had RA and lupus. Anyone else have enlarged liver problems?

  26. Sheliah Hipps says:

    I got sick with mono after I went to the prom when I was 17 with someone who was 23 and my mom told me the only way I could go is if she drove me to the prom and picked me up well that guy kissed me so I wished I’d listen to my parents and not went out with an older man anyway that mononucleosis almost killed me I got sick and was sick for a month or two and I didn’t want to go to the hospital but finally I could not even swallow my own saliva I couldn’t eat and I lost 20 lb. So I was crying and they were about to do a tracheotomy on me when I got to the hospital my throat was so bad I couldn’t even hardly breathe. they had nine doctors come in to look at my throat because they had never seen a worst case of mononucleosis in their lives my throat had patches of white looking cotton all over it I was covered with white thick patches that look like cotton on my throat.nine doctors were so shocked when they came in to look at me everyone was telling every other doctor to come in and look. I was in the hospital for probably a month I prayed to die I was so sick I actually prayed to die I’m so glad I got over it but when I started looking up exhaustion after you eat and sleepiness I found your blog and I’m so thankful I will get my doctor to test for EBV. Thank you so much for your information.

  27. Our story. My 19 year old daughter who has mild cognitive impairment and associated generalized epilepsy which is fairly controlled was a firecracker during her early years and most of her teen years. In Oct 2018 I heard from school that she couldn’t stay awake. They tested her for many things and found she had “had” epstein barr, I figured pretty recently. From that moment on we have been on a non stop roller coaster, taken her off ADHD meds and her weight has ballooned, her hair is thinning, her skin is super dry and she has acne we can’t control. I have been to countless doctors who all think I’m crazy because most of the tests they run are within range, not great but still in range…I feel so bad for her, I want her to have her life back. We are trying to keep her gluten free and eat as whole and healthy as possible but we just keep spinning our wheels. Any thoughts…?

  28. Sarah Pando says:

    This resonates with me SO much. I was diagnosed with Mono about two years ago… but my biofeedback practitioner suspects that I may have had it for longer. At the age of 8, I was diagnosed with an auto-immune disease called Behcet’s disease and have honestly had chronic issues since. I have pretty much cured myself through natural medicine, herbs etc. BUT since getting mono I have felt awful on and off for the last two years, basically the same issues that you had just extreme fatigue.. etc even after eating healthy and such.

    • Leah Bates says:

      I currently have Epstein Barr for the third time. I am 41. First time was 25 years ago when I was 16. It wasn’t too bad. I have had strep it feels like a 100 times even with my tonsils out. About 18 months ago my cheeks puffed up and it looked like I had mumps., I had a headache, sore throat, extreme fatigue. I tested negative for mumps but positive for Epstein Barr (46). I was sick for 6 weeks and fatigue m, well it got some better. Over the last year I have had episodes of fatigue, sore throat and headaches but I was only down for 4 or 5 days. Then two weeks ago my cheeks puffed up again. Very sore throat, he ache, body aches, extreme fatigue. This time I knew to get tested. So day ten I got tested and was positive again (56 this time). I am so tired and I have this fog in my head that makes walking difficult. Last Friday I was in the hospital with a new symptom, spleen pain. My spleen is little enlarged but the nurse told me it is an uncommon symptom but it can happen. I go to an immune specialist later this week. I will look into some of your treatments. Thank you for sharing. Not a lot of information out there.

  29. Jo says:

    You’re story sounds so much like mine! I am now 39 yrs old. Exhausted ALL.THE.TIME. I was a prude in high school 😀 somehow got mono, probably from sharing a Diet Dew and never felt the same again. I was on dance team etc, too. I have been working with doctors on monitoring my subclinical hypothyroid. I still exercise regularly with TONS of caffeine because I’m TIRED. Well, after feeling even worse recently, a friend mentioned a functional doctor. I went to them and they tested my thyroid, in a range that they deem treatable where as my conventional doc didn’t feel that way. But my Epstein Barr levels..she tested for 4 antibodies: EBV VCA IGG – reference range 18, mine was greater than 750, EBV Early Antigen D AB IGG reference 9, mine was 24, Epstein Nuclear Antigen IGG reference 18, mine was 269 and then there was the one that will always be there I believe EBV IGM. I’m treating with healthier eating, supplements and when my body is ready (due to some other factors) antivirals. I was clinically diagnosed with Lyme’s twice in the past with the bull’s eye rash and feeling like death so we thought that’s what we would end up focusing on. Here we are. Long story short, THANK YOU FOR GETTING WORD OUT. Do whatever you can to make your site more searchable! I actually just happened to come across this now….so many conventional websites are higher on the list 🙁 Side note, I also heard of the Medical Medium and have the book. For the spiritually skeptical, not a good read…but I fully embrace Spirit and felt this is so very helpful! Good luck on your journey! Be well!

  30. Does anyone know a metabolic doctor to address v vitamin 6and twelve elevation with now adrenal issues and 37ct scans after multiple visits for belly pain now issues from that and now my immune system is shot and I’m 57with mono n haven’t been around anyone

  31. I am 57 yrs old and had pretty healthy life until I had downs syndrome kids twins at 34 .I lost a child it was traumatic and this began a multitude of health issues. I have rare b vitamin issue with chronic b6 and b12 very high and now metanephrine labs and urine for adrenal problems and I have been sick for months inflamed severe pain belly pain horrible fatigue and misery after a yr of hell visit after visit being told I’m just depressed etc a PA did epstein barr test and it is active. I had at young age. I’ve always been the tired person but now this. I yet to have any medical help for any of this and desperate for any info etc. Medicine has not been good to me.

  32. Esther says:

    I’ve been dealing with the same situation around 30 years or more..
    I’ve gone to plenty of md’s, naturopaths, integrated and functional medicine docs..
    I did read a little and listened to the medical medium on YouTube and Facebook..
    I am 3 months into this cycle again and am glad I found your post..will continue to read and learn
    Thanks for the info and personal history…

  33. Aline Vieira de Carvalho says:

    Thanks so much. My name is Aline and I live in Brazil. I live with cronical Episten-barr infection since 2000. It´s so difficult to find a doctor who belives in your pain! It´s very important to me read your text and the comments about episten barr active.

  34. James Spiazzi says:

    So i am so confused i was just diagnosed with ebv on my last blood test on 9/16/20,but before this i have had severe obstructive sleep apnea.One of the side effects of sosa is excessive daytime sleep so i was curious if one might have had something to do with the other,according to what i read they do not.So i believe i am fighting 2 battles but i am not sure if the ebv goes away or do i still have it.Totally flipping out i am 61 yrs.old and in good condition very depressed after finding out about the ebv.If there is anything you can tell me to cheer me up it would be much appreciated.Jim

  35. Claude says:

    Hello Elizabeth . Thank you for telling your story about epv. I too was diagnosed with it in 2013 and feel I never completely recovered. Like you said modern medicine doesn’t t know how to cure. I also have been diagnosed with ibs and fybromyalgia and suffer from chronic fatigue. I also developed weird allergies to food and odors. I will read the book you recommended because living with this disease us a constant nightmare. Ps. I was not diagnosed with mono and also I am 57 years old.

  36. MO says:

    Wow I’m so pleased to come across this!
    At the age of 34 I went to doc with pain in my neck, severe sore throat and swollen glands which had been ongoing for 2 weeks. I was told I was too old to have EBV!
    I recovered but would catch every germ my young children bought home from school… I went privately to get a EBV blood test and low and behold it was positive.
    20 years later I occasionally go down with viruses that literally knock me for six.
    Currently I have had for four weeks, a sore throat / aches / extreme tiredness and if I feel a little better, housework puts me back to square one.
    I’m so grateful to read your story. I’m currently researching different things that you are suggesting , particularly Lauricidin.
    Thank you 😊!

  37. Jennifer says:

    Elizabeth I felt like I was reading my own life story and I’m from Montana too! I had step constantly growing up and ended up developing an allergic reaction to penicillin due to so many courses of it. They decided to take my tonsils out at 17 my senior year of high school. They couldn’t get them to clear so they had to remove them infected and I literally almost died. I was in the hospital for awhile after the surgery. Everything else is a blur but I’m fairly certain I had mono before the tonsillectomy. It was a bad case of mono that last for weeks. I do get my thyroid tested regularly and the levels fall in the “normal range”. Two years ago my naturopath thought to test me for reactivated EBV and sure enough results came back positive. She didn’t seem to know how to treat it but we tried immune support measures and retested 8 months later – still high. I just retested last
    week and it’s off the charts. I will try your protocol and read Medical Medium. Can you share who your doctor is and if they are taking new patients? Or anyone you recommend in Orange County CA? In my google search I am not finding anyone credible sounding. Thank you for all you shared you are saving lives. I
    now understand my lifelong struggle with exhaustion and have renewed hope!

  38. Nicole says:

    I have recently started listening to the Medical Medium audio book after learning about the vagas nerve and am starting to think EBV maybe the cause of my abdominal pain & digestive issues. I’ve seen countless specialists with varying diagnosis and unsuccessful treatments. Including Autoimmune Pancreatitis, IBD, IBS, anxiety (its all in your head disorder) and acused of been just plain unhealthy. I have had steroid treatment where I could hardly get out of bed for months and enzyme treatments and other various medications. Nothing works. I hope that this will finally be the name of the virus causing me all my troubles so I can heal and restore some kind of normal life with dignity.

  39. Jancy says:

    I truly believe we stumble upon where we need to be or hear what we need to hear!! Diagnosis was Hashimoto’s disease 15 years ago. No meds ever worked. Stroke symptoms 5 years ago and now lupus!! I have started acupuncture and vitamins. Help!!😢

  40. Jill Mulder says:

    I’m so glad I found this. I had mono in 8th grade (sharing pop) and after high school graduation. Allergic to penicillin, sulfas, had strep and constant ear infections. I was attacked my a dog in 2019 and apparently the stress activated my ebv again. I’ve only recently learned this. I’ve had health issues, chablain lupus, fatigue for a few years, but after the attack I just couldn’t shake it (mind fog, exhaustion) and was covering it up with alcohol. Functioning alcoholic? Drinking by 3:30 every afternoon.. by January 2020 I ended up in the ER with pancreatitis. Quit drinking that day. But brain fog never cleared. Went to holistic dr as my toes (what I thought was Raynauds) were awful and I could hardly walk. Dr tested my ANA, full vitamin panel and EBV. ANA came back positive with Lupus SLE and hypothyroid, EBV thru the roof! Western medical dr laughed at my results as you said.. “everyone has EBV”. No. Not like this. STILL trying to find a dr that can help me outside of holistic care! And it’s even worse now since Covid!! Please reach out to me if you can.

  41. Stephanie Schroeder says:

    I was diagnosed with Mono at a young age….my whole life I have fought chronic mono or reactivated mono I’m 34 yr old and I need help I am exhausted constantly

  42. Leah Jackson says:

    Well this is just the story of my life, I just finally got a Dr to test me and guess what, it came back as recent or active “mono”, which I am going to say active because, I am so tired I can barely function. Thank you for the information, I have downloaded the Medical Medium book from my library, ordered the supplements and am calling my ND today for some Ozone treatments. PS, I have been previously diagnosed with RA, Lupus, and Hashimotos. Which I thought I had treated and under control ALONG with thinking I had treated the EBV but I guess I was wrong.

  43. Faith says:

    I have been running a fever for over 130 days, during Covid19, and have had sooooooo many labs done. Most recently I had EBV VCA testing done, and my IgM and EBNA IgG were both negative, yet my IgG was over 600. I had active mono three times in young adullthood, but that has been over ten years and I am currently negative for mono. I also have hashimoto disease and have had my thyroid removed due to cancer.
    All of the info on reactivated EBV is so very confusing. Thank you so much for your posts, I found them so helpful and they gave me a bit of hope during this crazy time! I plan to implement some of your techniques and hope to be on the road to recovery soon!

  44. Courtney says:

    Wow! Thank you so much for sharing. Until now I’ve never read anything from another human with chronic EBV. I also got very sick with EBV in high school. Except I never got over it. I had to be homeschooled because it didn’t go away for 9 months. Then I became very ill from “interstitial cystitis” and had to see a specialist at Hopkins. He surmised that the EBV attacked my bladder wall lining (instead of thyroid like it did for you). I barely went back to high school and had trouble in college too. I was also an athlete (volleyball and swim). Even 18 years later I still have issues. I catch colds/viruses easily. I have prolonged periods of extreme fatigue and other random symptoms (painful joints/lymph nodes, migraines, painful skin, etc.) that no one can explain. I haven’t been able to find a doctor who understands chronic EBV. Will check out the book, thanks!

  45. Kara says:

    I had mono when I was 17 (47 now). I remember the fatigue being intense. Following that, I continued to have bouts of serious fatigue, vertigo, sore throats, fevers and swollen glands for years. No doctor took me seriously. I was told multiple times that it was allergies. By my early 30s I would have to be treated with antibiotics for tonsillitis about every three months and all the other symptoms would still come and go. I finally had my tonsils taken out at 31. The surgery was terrible but, besides occasional bouts of fatigue and a scratchy throat, I have been quite a bit better since then. I’ve always thought it was EBV. Now, my daughter is 16 and is being evaluated for Alice in Wonderland Syndrome, which may have been caused by mono. Some people think mono isn’t a very serious disease since it is common, but I believe it can cause years of turmoil for some.

  46. Elizabeth says:

    I had mono when I was in 5th grade and since then every few months/years I’d experience overwhelming fatigue like I had been hit by a bus. My parents and doctors attributed this to my “go-go attitude” and that I was stretching myself too thin. I was an A+ student, three sport athlete, and eventual D-1 athlete at Georgetown. After I graduated from college I finally sought psychiatric help thinking that my fatigue was linked to depression. Nearly 5 years later, my psychiatrist made me go get tested for anything that could explain this fatigue, muscle soreness, and body aching. My titers were through the roof. Now that I finally have an explanation for this fatigue and these symptoms I have no clue where to start so I’m so thankful for this post. It makes me feel far less isolated in this.

  47. Shelby Schneider says:

    Hello! In the midst of the Corona crisis; it now appears what I have is a reactivated Epstein Barr condition?? Super scary and weird. Symptoms came on suddenly almost 3 weeks ago now. Thank you for this! My ND had me do a blood draw yesterday; will get the results including EBV anti body testing, on Tuesday June 2.

  48. Lynden says:

    I wish I had known about this 3 years ago! 20 years ago I tested negative for mono, but then was hospitalized and diagnosed with ITP (unknown origin low platelet disorder). In the last three years I have felt crazy and almost like a hypochondriac for insisting something IS wrong with me. Then last year, my thyroid plummeted and I was diagnosed again with unspecified hypothyroidism. Only recently when I switched to an integrative medical team, did they test for EBV. I had no idea, and it explains so much now and from the past.

  49. Nasha says:

    Thank you for your post. After two months of being sick and unable to get off the couch and having my husband having to handle both work and our three kids I finally went to doctor and sent in for lab work and just found out I have EBV. The two months of being sick was mono and now I am getting an ultrasound to check my spleen. I’m a 47 year old woman and married with three kids. My husband seems to think it’s no big deal since it’s so common but I am terrified! I did so much research on the internet and it all was either too scientific or to general AND then I came across your post. Which lead me to Medical Medium which was all I needed. I cried happy tears thinking ok, she has what I have and she is vibrant and happy and then combined with the book I feel like I have a chance of living a normal life. I hope. I’m still scared and I still cry but now I have a road map for healing, so thank you so very much.

  50. Marilyn S Hernandez says:

    I have been struggling with what the drs call a viral infection they can’t figure out for about 3 months now. I think its related to mono that I had at 12 years old. I had the blood test done and they found that it had been in my system but there isn’t a current infection. I have had rashes, tight neck and lressure in my head. Fevers for 2 weeks, joint pain, muscle spasms.. neurological effects as well. My question is. Can you have a relapse but not show a current infection but past infection?

    • Allison says:

      I had mono this past October I got extremely sick and even went into early liver failure. I finally started feeling somewhat better but In May ai got sick again. My blood tests confirmed I have mono again. I have had so much pressure in my head and extreme neck and back pains. I have tried everything and nothing seems to help. I feel like the virus is attacking my spinal cord. When the doctor gave me prednisone the inflammation finally came down and I felt a little better but once I was done with the course all the inflammation in my back came back.

      • Allison says:

        Update was prescribed – Rizatriptan a migraine medication. It does seem to help with the pressure in the head.

  51. Linda Moore says:

    I think I’ve got stage 4 Epstein Barr, in the nervous system. I’ve been on Medical Medium journey for over a year. Still layers of issues and challenges. Very hard journey.

  52. Bonnie says:

    Thank you for this post, I am going to continue reading your blog because I have recently been extremely sick for 6 weeks and my doctor tested me for Epstein-Barr and my numbers came back above 500. I am only now able to get up for a few hours at a time to cook for my family. With Asthma and heart problems on top of this it has been devastating for me. I will be seeing a new Oncologist the beginning of May because I have Hemocromatosis. I find it fascinating how autoimmune diseases tie into thie because those run in my family. I also have arthritis

  53. Gayle Temkin says:

    I just had a blood test in Ajijic, Jalisco, Mexico. The alternative MD physician did a regular blood profile, which turned out good but it showed that I had an elevated EBV count of 420 and Salmonella. Now I understand why sometimes I get so tired, nauseated, etc but I don’t know what to do with this condition and I don’t know how bad it is either because the doctor had limited English. More about what the doctor prescribed, which I am not doing right now.

    • Jennifer says:

      I experienced recurrent strep all throughout childhood just like you did. I also experienced one of those occassions when I was so sick with strep that my joints were severely swollen and sore. This was by far my worst strep case. I even developed scarlet fever as as a child where it became so bad that my skin peeled. Throughout my childhood I fought not only strep, but major earaches and infections, along with bouts of severe hives. I finally seemed to “grow out” of this and became somewhat normal without the bouts of strep or earaches and infections, but still dealt with major cases of hives. In college, I accidentally picked up a coworkers drink that I thought was mine and picked up fever blisters (aka herpes) on my mouth. At 32 years old, I developed chickenpox (which I did not ever have as a child). Strange thing is it was a mild case of them. Then bam! After that, I became sick with the flu and my body took off….I stayed sick at 32 with a period of illness for almost 6 months where I developed bronchitis and had a hard time shaking it. Then from that pint on, I experienced patches of colds, sinus infections, bronchitis, and the list goes on. Finally, I was tested for asthma at 36 and found that I have it and was allergic to 95 percent of everything they tested for to include wheat and soy (hence my experiences with hives and likely the ear infections and also the bronchitis). I was treated for allergies with shots for 3 years and have tested negative for those particular allergens now. Then in my forties I became sick again all the time with something and would have trouble recovering from it all quickly. At 46 I developed the flu, pneumonia, some other viral infection, and bronchitis. I managed to stay out of the hospital with the help of 2 great doctors and my mind for knowing how to help it.
      (Oh, I forgot….I was hospitalized with pneumonia at 2.) Then at 48 years old, I developed shingles. So….at this point I have had a total of 3 herpes viruses invade my body…..fever blisters, chickenpox, shingles. Then in 2018 (at 49 years old) I became severely sick with the worst sore throat I can ever remember having and so fatigued I couldn’t function. Strep and flu tests showed nothing, so a physician assistant spot tested for mono. That test was negative and I was sent home with….well you probably have a viral of some kind. (Sometime in between 40 and 49 I was also diagnosed with rosacea, acne rosacea, ocular rosacea, blepharitis, cataracts, eczema, and fibromyalgia. And my shingles case above was only the worst burning and tingling and never turned into the blisters due to me beginning antiviral meds and having a steroid injection. But I suffered from post herpetic neuralgia afterwards for two years. And my doctor thought I could have some autoimmune response similar to lupus or RA because all the joints in my body hurt, I become nauseous, dizzy, have headaches for no reason, and numerous other things. I also forgot to mention that I struggle with migraines since a child and as a pregnant adult at 36 those migraines changed to include visual auras before those migraines.) So at 49, I went home determined I was destined to die when my “viral” diagnosis turned into lightning pains in my chest, leg, and arm and I experienced some slight paralysis in those areas and could not bear to move them or have them touched. I finally refused to go back to that physicians assistant and requested an appointment with my actual doctor. He immediately knew upon seeing me that I was sick as I have an extremely high tolerance for pain. He looked through the PAs notes and said why did she not do an EBV titer. I had no clue what he was speaking of completely, but had heard the letters before. He then explained that the quick.mono spot test was not entirely reliable to diagnose mono. He ran the ebv titers and also cytomegalovirus titers. It appears from those that I was in the past infected by both cytomegalovirus and mono. BUT what WE weren’t prepared for was the extremely high numbers for a reactivated case of mono. So I became not only reactivated with mono, but then it was clear why I struggled with diarrhea since my liver tests were also off likely due to the ebv infection. It took almost a year to begin to feel some better, but I still struggled. Then I experienced issues againand added an experience with my neck swelling. I had an ultrasound of neck lymph nodes and had 3 show issues in ultrasound, so he checked ebv titers and found them high again. So I was back to a 3rd reactivation of mono! He decided then to consult an infectious disease doctor and do research of his own. He decided to give me an antiviral and steroid injection. This seems to help me get through it. I know they aren’t great for me, but they helped. He has now termed me as having chronic epstein barr. He has also said that it is like I get sick with a cold, a bladder infection, the flu, or whatever and my body sees whatever is going on and decides to attack like I have mono and reactivates the epstein barr or something like that..
      I really can’t explain it the way he did. But what I experience and what you do isn’t rare apparently. Doctors just don’t know that much still. I am thankful my doctor has a clue and sees everything I have experienced for what it is
      But with the fourth herpes virus in my body, he is positive my body is overrun and cannot fight like normal. Stranger still? My now 14 year old s9n started at six months old sort of like me with illness, then pnemonia at 2, asthma diagbosis, allergic to 95 percent of things tested for, them his strep and scarlet fever experiences. Finally, when I was experiencing my second mono, he began to mimic my sore throat and fatigue and pains in left side and then the paralysis in chest, leg, and arm and major lightning pains. He was diagnosed with a.past infection of mono and a current reactivated case of mono and enlarged spleen. He had a hard bout with it. Then when I went thru my 3rd bout with mono, he also began to exhibit left side pain and fatigue and sore throat again. He also was found to have a 3rd reactivated case of mono and another enlarged spleen! How is it possible in the same household? I am now reading of some research on this coronavirus and why some exhibit symptoms and also some have serious issues while others experience no symptoms of coronavirus at all. Those conducting the research believe it has to do with EBV. They wonder if contracting coronoavirus perhaps stimulates those with ebv to perhaps have a reactivated case and perhaps why they have symptoms and even adverse issues. Is it possible? I definitely pray my son and I don’t contract coronavirus, but if we do I will ask for ebv titers to be done for possible reactivation and will request antiviral meds like acyclovir and perhaps ask my own doctor about a steriod injection to go with that. Perhaps if it is found the ebv research into this new virus pans out then maybe we will get more research into ebv and a possible treatment? Or better?

      • Maud says:


        I have just read your entire comment
        I would highly highly highly suggest you read the book mentionned in the blog post: Medical Medium by Anthony William
        I promise you’ll find the answers to aaaaall the questions you wrote down, in that book and the next ones of the series

        I hope you’ll be able to heal soon 🙂

      • JESSIE says:

        Can you send the links to research connecting Coronavirus with EBV. One week after quarantine I’ve come down pretty sick with strong positive EBV. I’ve had no symptoms since I had EBV 25 years ago. It’s just weird to me that it would return now during CVD. I’d live to read more about the possible connections.

    • MolY says:

      Omg I am so happy that I found your blog. I’ve got mono 5 years ago and since then I never felt the same again. Feeling tired, lots of joint pain and more importantly I get so leision in my mouth that they don’t go away. I even did biopsy on them but it didn’t show anything. Does anyone else have this problem? For sure I am going to ask my Dr to write the whole EBV test for me. But thank you, I don’t feel I am alone and crazy anymore!

  54. Nancy Galloway says:

    Hi Elizabeth! I was just diagnosed with recurrent EBV.(wonderful hearing this during a pandemic 😜). I’m actually relieved to have an actual cause of my exhaustion. I feel I’ve been dealing with the exhaustion for a long time. My thyroid T3 has dropped significantly and my integrative doctor increased my THROID medication. But also suggested OZONE, he’s one of the few that does it in his office. My question for you is how often do you do the ozone/ days apart? I had one Thursday and have another one in a week! He told me 1-2 weekly for a few weeks. When do you start feeling better? Thanks…Nancy

  55. Mary says:

    It started with mono in 7th grade and have felt like I never recovered. Life changed completely from that point on. It was complete exhaustion . Always fatigued and could fall asleep anytime anywhere. Migraines, strep, sinus infections, IBS, viral meningitis, depression, panic attacks, Rheumatoid Arthritis, Hashimoto’s, hypoglycemic, and adrenals on the brink of collapsing. I always knew it had to be connected to mono!

  56. Mary says:

    Validation finally!! I had mono at age 11 and life has never been the same. RA symptoms started 12 years ago with diagnoses years later after being told it’s all in my head, I am nuts, lazy and selfish etc. I have been exausted ever since, constantly sick, in pain, depressed and belittled by family over it as a bonus. I haven’t seen much talk about depression but know it is connected. I received my positive EBV results, fell on this blog and read the medical medium all yesterday. I was driving listening to the audio with tears running down my face hollering YES! YES! This is it!! Finally! Then…oh God lord. Now what?

  57. Pippa says:

    I first got EBV when I was 17, and I’ve had several strong reactivations since, one of which actually went to my eye and has caused blind spots. I was good for a couple years, now following a move abroad I have suffered a couple of times from the typical viral headache and general fatigue – so I think it’s come back. The most frustrating part is I can’t seem to get a solid answer off doctors. Like you said, most of them don’t take me seriously when I mention EBV and I am just left as lost as before. I want confirmation it is EBV so I don’t feel crazy! Currently in a stage of presumed reactivation now, just waiting to feel better again. All the best with your journey!

  58. jacques Miller says:

    I loved this page. I have been feeling horrible for the last 4 years and two years ago I decided to visit a naturopathic Dr. We ran blood test and found that my EBV antibodies were off the charts. (over 600). I have been on a whole-plant based diet for over two years and while my overall health is incredible I haven’t had much luck with my neurological issues. I have just discovered the ozone therapy you talked about and I can’t wait to try it. I have an appointment in two weeks. Thank you so much!

    • Hi Jacques, so glad you found it helpful! Keep us posted after your ozone treatments! ~E

      • Kristina says:

        I also just received off the chart high levels of EBV VCA IgG >750 and EBV Nuclear Ag IgG >600 however I was negative for EBV VCA IgM and had a low maybe positive level of EBV Early AG igG. Not sure if I Am about to go through reactivation or if I am getting past one. But this forum makes me feel so much better I am not alone.

  59. Alanna says:

    I had some dental injections over the summer and my last one was Nov 18th. The next day I was in the store and felt like I was going to black out. My whole body was shaking and blood pressure super high. I felt dizzy and like I was falling. Went to the ER and they diagnosed me as “near fainting spell”. Well I haven’t felt normal since. Extreme fatigue, dizzy, lightheaded, nervous stomach, shaky, weak, anxious. Finally got EBV bloodwork done after a doctor suspected something viral when I mentioned I take L-Lysine for small fiber neuropathy. I just started the anti-viral protocol today. I’m on day 6 of celery juice. My fatigue has actually gotten better in the past week, but the anxiety is awful. I have never felt like this in my whole life. I’m scared to live. Lights and sounds are too much for me so I can barely go anywhere. Sometimes I feel like I’m falling. That part is what is confusing doctors. The lightheadedness and horrible anxiety. I’m so glad I found your site. I can’t handle living like this. I’m praying the anti-virals will start working quickly.

  60. I just read your blog and feel so vindicated. I am purchasing The Medical Medium today as well as reading the remaining blogs. I was diagnosed with Hashimoto’s and have been reading several books on the root cause. I recently had swollen lymph nodes everywhere, fatigue, but no fever. I strongly encouraged the doctor to run every conceivable blood test…cost is not important if your health is at issue. I told him my suspicion of EBV reactivation. You mentioned your test was over 40. My same test was 128! The prescription was rest and fluids. I told the doc, “Good luck with that.” I work more than full time in a very active profession. Thank you for sharing your story. I look forward to reading the rest.

  61. Brian says:

    “Not wise to curse” – Karma

  62. Teresa says:

    Hi I’m hoping maybe you can help me out here.
    I have a copy of my (EBV) Profile, Chronic, Active Infection.

    My EBV Ab VCA, IgG level came back 212.0 H

    My EBV Nuclear Antigen Ab, IgG level came back 360.0 H

    I feel horrible and have now for years with each year slowly getting worse.

    My question is what do these High levels mean.
    Several doctors I have gone to and showed this blood work to say it’s nothing to worry about

  63. Fiona says:

    Hi – thank you so much for this great post. I recently read The Medical Medium and it really rang bells for me. I had mono in my early 20s and I felt like the fatigue never really went away 100%. After the birth of my son I had recurrent tonsillitis – so much so that they wanted to remove my tonsils, even though I was 38 or 39 at the time. I resisted because I didn’t want surgery with a young baby. Again, I suffered an all-enveloping fatigue which was more than fatigue due to a baby. I was then diagnosed with mitral valve prolapse; I’ll never know whether this was as a result of the continual strep throat or whether I was born with it.

    I’ve always found my symptoms (fatigue, palpitations, shortness of breath, anxiety and back and joint pain) far worse in the fall. This year, I’ve been taking a number of supplements recommended by The Medical Medium, and overall I feel I’m coping better than usual…

    I will be so interested to read any further articles you write about this.

  64. Maura J says:

    Hi, great site & appreciate all the info and reading about your stories. I’m a 55 yr old female diagnosed with mono in December of 2018. Currently unwell with same symptoms since end of August 2019
    My question is….is it possible to have mononucleosis again with a negative “ebv dna by pcr test” ? Any help would be appreciated. I asked for the ebv panel & I was not tested for mononucleosis. Also, how long do most wait for lab results? I’ve waited 6 and 7 days for labs & I’m always making the contact, very frustrating!!
    Thanks very much ✌

  65. Chelsea says:

    So I just got diagnosed with reactivated Epstein Barr. I’m 32 and was misdiagnosed with fibromyalgia at 25/26. I relate to so much of this, but my thyroid has just been inconsistent. Like when I got the blood results with the EBV diagnosis, my thyroid looked great. So basically, is what she called reactivate or recurrent Epstein Barr the same as Chronic Active Epstein Barr? I can’t seem to find out if they are the same or different online.

  66. Ashley says:

    OMG this is legit my life right now! I would LOVE to talk to you as I’m trying to have a baby and just got told the EBV is active.

  67. AMANDA L GRAVES says:

    My son had mono last year, about a year later he started complaining about swim practice being too hard. I said to my sister…” It’s like he has mono again!!!” And she said maybe he did…
    Which got me thinking he was anemic, like when he had mono. I put him on iron and a week later it was like a different teenager.

  68. Robin says:

    EBV is a real virus and could cause real problems. HOWEVER, I would not be so quick to believe someone who writes a book claiming to get medical advice from voices in his head. I think it highly likely that he is a con artist making use of the latest memes in alternative medicine to make a quick buck.

  69. Brandy says:

    I relate to this all too much!!! In February of this year I went to my Primary doctor complaining of intense fatigue and flu like symptoms (low grade fever, chills and body aches) and a rash that seemed to follow. The symptoms would come and go and all seemed to start after I had my son 8 years ago. Previous doctors dismissed my symptoms and fatigue as being a working mom and one even tried to tell me that I had Seasonal Effectiveness Disorder. I knew this was incorrect and just simply gave up for a period of years. Fast forward back to this February when I tried a new primary and he actually listened and ran a blood panel. It came back positive with EBV and Celiac Disease!! I saw a gastroenterologist and had an Endoscopy and Biopsy done to confirm the Celiac and am now on a gluten free diet. I also was referred to a Rheumatologist for all of the body aches and was diagnosed with Fibromyalgia. I was feeling a little better for a few months then WHAM! All of the symptoms came back so back to the doctor I went. I just received the news that my EBV levels are still showing an active infection and now have been referred to an immunologist. I have yet to get that appointment scheduled. Thinking back I could not remember ever having mono as a child but in reading this post and hearing that the virus is linked to the herpes virus that causes fever blisters and virus that causes chickenpox all of a sudden it became clear to me that I am pretty sure that I have been battling EBV much longer than just this past year. When I was a baby I had a horrible bout of fever blisters and about a year after that a horrendous case of chicken pox. Years later my digestive system was plagued in elementary school and I was eventually told I was lactose intolerant. I think I contracted the virus as a baby and it has plagued my body ever since. Something triggered it after I gave birth to my son and for the last 8 years it has progressively gotten worse and more frequent. Reading this article has given me hope as battling an invisible disease like this is draining mentally at times. People don’t seem to understand that you don’t feel well because you look ok on the outside. I will be asking the immunologist about all of this and seeking a more natural way of medicine going forward. Thank you for sharing this article and giving people like myself hope!! 💕

  70. Ann says:

    Hello! I have been battling chronic EBV for about 8 years. The most recent ‘reactivation” ha slats nearly 9 months and I’m fed up. My tonsils are destroyed and on top of the fatigue I get frequent sore throat. I am on the fence about a tonsillectomy. I really want the “quick fix” of it, but also know that their are benefits to having them. Were you glad you got your tonsils removed? Do you do anything to compensate for things like the cancer fighting cell production that tonsils have?

  71. Jayne says:

    I’ve had a thyroid nodule for about 5 years, and low energy for a loong time… Since having mono in highschool? I’m 56 now. Recent labs showed excellent numbers in everything (I take very good care of myself) except very high thyroid antibodies. So I got my EBV levels checked. Just got my lab results yesterday, and haven’t been able to get an explanation from my naturopath yet. The VCA, IgG and Nuclear Antigen Ab, IgG are flagged High at >600!

    I have read Medical Medium. I am taking Lauricidin and other supps. I will overcome this to feel vibrant again!

    Thanks for this information and opportunity to share.


    I too have been recently diagnosed with chronic reactivated epstein barr virus (antibodies at 114) and have never felt worse in my life. This is on top of a chronic fatigue diagnosis 9 years ago that I battle off and on. I’ve also just been diagnosed with stage 3 kidney disease, out of the blue, and I’m wondering if there is a connection. My rheumatologist said my number were high normal so i could get an autoimmune in the future. I also have Raynaud’s Syndrome. Prior to this, I’ve been very healthy my whole life. (I just turned a young 62). Any thoughts would be much appreciated. Victoria 🙂

  73. Laura says:

    Hi Elizabeth

    I read your post on EBV, because I googled this topic, and it really resonated. I similarly had a tonsillectomy and mono about 14 years ago. The reason why I was googling is because every time I compromise my immune system a little bit (a big night out drinking or an international flight), I get a sore throat accompanied by fatigue, headache, possibly fever, and insomnia. It’s almost predictable. Could this be EBV reactivated?


  74. C. Lawrence says:

    Very Interesting!
    My EBV tests showed EBV Ab VCA lgG LC of 403 when the normal range is 0.0 – 17.9. The glands in my neck were swollen and I was feeling tired. Concurrently, iron tested low and related blood tests pointed to anemia. Is there an interaction between the EBV and iron components in blood tests? I had mono nearly 50 years earlier.

  75. Donna says:

    I am 52 and came down with mono at age 40. Thank goodness that my doctor at the time tested me for everything – lupus, lymes, mono. It took me a good year to get over it and even then I would have what I always call “flare ups”. They would last a few days to a week. Now my symptoms are a little different. I’ve gotten over the exhaustion but when I have a flare up it is mostly incredibly ache joints and muscles. I describe it as feeling like you are coming down with the flu. Now though I have started feeling very tired and the achy joints and muscles are the worst they have been in years. I do find that triggers for me are stress and some food but mostly stress. I am right now preparing for a large conference next month at my one job and working full time at my other job so I am extremely stressed out. I get up and exercise every morning at 4:00 a.m. and usually that helps but the joint and muscle pain make it very hard right now. I’ve found hot baths and ibuprofen to help. As you have said – there is no cure and you just have to listen to your body and see what works. I have found a good doctor that understands chronic EBV since my first doctor who diagnosed me and have found a lot of doctors disregard you. Thanks for your blog – it helps knowing that there are other folks out there that are in the same boat as myself.

  76. Debbie says:

    I was recently tested for reactivated EBV and my level is 48. Good to know why I’m frequently exhausted and now I want to find ways to get better. Will definitely read your blog posts on this. Thanks!!

  77. Julie says:

    In February I was diagnosed with mono for the third time in my life. I just had a checkup at the end of July and my doctor says that my results show a recent past infection but my symptoms are still here and my numbers are still high. Can anyone tell me if these numbers show recent active infection? Trying to interpret these test results is so confusing….

    Epstein Barr virus capsid IgG Ab >600.0
    Epstein Barr virus early IgG Ab 28.4
    EBV Nuclear AG AB IGG 473.0

    What does all this mean??

    Also, very grateful to have found this blog. Medical doctors here have no idea how to treat EBV.

  78. Elizabeth says:

    Just found your blog and I am sitting here in tears as I am reading. This describes my life!! Chronic strep as a kid, mono as a teenager, hypothyroid in my 30s and still feel like crap in my 50s. I’ve been in and out of doctors for the last 2 years trying to find out why I feel so bad. They wouldn’t listen or help. I finally went to my therapist – everyone was telling me I was crazy! I told her that I felt that this was something physical and that we couldn’t “counsel” me out of it but I was there as a last resort. I know all about self-care and I was doing everything I knew to do. She listened – and she agreed. She also referred me to a D.O. that listened and ran a ton of blood work. Finally, today, they went over my results. I have reactivated EBV and Lyme disease. Some thyroid antibodies that point towards Hashimoto’s but I am learning that this is more effect than cause. We put together a treatment plan and I will follow up in a couple of months. I finally have hope!!!!

  79. Jill Kolivoski says:

    Thank you for confirming all of this information I knew deep down in my heart. Fascinating that you align with the Medical Medium because I bought liver rescue but have yet to read it. I know he covers this topic but I wanted to google the topic and see what popped up. I had a horrible case in 9th grade and was in bed for 4 months. After that I was never the same, as you said all the doctors told me I was fine. I’ve done adrenal protocols for 5+years; I’ve flushed my liver every 4 weeks for 3 years; I’ve bought and used any supplement that I was told will help me. Not only am I constantly “tired/off”, but I get sick/sinus infection type illnesses if I don’t get sleep and get run down. At one point like you the doctor gave me the strongest dose of antibiotics every month. I knew that had to be a better way so I’ve not taken antibiotics since 2004. I just use colloidal silver every time I get sick but this bought has bed ridden me. I’m a natural professional bodybuilder and with a few night of travel and no sleep, I’m now bed ridden and sick again. My throat is swollen and brings me cellular memories of the horrific days in 9th grade. The body aches hurt so bad. The greenish drainage from all of this goes dormant and comes back with a vengeance. It’s been muscle testing this is EBV and I need to get this fixed. I’ll do whatever it takes. Whatever. I’ve even practiced UT in hopes that would fix it. Sigh. I look forward to figuring this out. Right now I’ll take my lemon balm and ashwaganda and try and find more remedies. Thank you for your help.

  80. Tali Amar says:

    I have had the craziest symptoms of 2.5 months of chronic nausea. It was everyday, some days were terrible and other tolerable. As soon as that ended I began feeling numbness in my left arm and then left leg and then within a couple of days my entire body lost sensation to touch! I could feel being touched but it is as if my skin lost sensation. It’s been 4 rough months and just yesterday, my new doctor gave me the results of the EBV of which the antibodies are active and high. Have you ever heard of these symptoms due to this virus??

  81. Catherine Poulson says:

    I’ve been researching my reactivated EBV and escalating EBV antibodies for 4 years now. All doctors keep telling me it’s not a big deal. Then the autoimmune diagnosis came. I KNEW IT HAD TO BE CONNECTED TO THE EBV. Then, I had a seizures. An ER trip and weeks of testing confirmed I am totally normal. Doctors STILL said it wasn’t connected to EBV – but I knew it had to be. I eat so healthy and take good care of myself. Plus I gave up drinking and eating sugar to tackle this EBV. A second seizure led me to a functional neurologist who tested my iron. I have like none. The EBV ate all of my iron (even though I was taking a supplement). The low iron caused the seizure and the autoimmune disease. It’s all becoming clearer – but it’s taking time and a lot of effort on my part. There are no easy answers. New iron supplements are helping me. I feel great. I am afraid they will start feeding the EBV soon – and I’m prepared to eat a lot of celery. 😉 Happy I found your site. Thank you.

  82. Angel says:

    I was dx with Epstein Barr when I was 38. the Dr. said my titer was so high he didn’t know how I got in his office. I was in bed and out of work for 4 months and relapsed quite frequently for years…it’s been 15 years since I have had a relapse until now…I am 65…been sick for 7 months, Dr kept blowing me off telling me it was a virus , I would feel better in a few days…I did and then within a week or so I was back in bed, fatigue, chills, knee and shoulder pain. muscle weakness…..I finally put my foot down as he was telling me he thought I had a chronic sinus infection, I have had 2 in my life and knew that’s not what it was and told him, I felt like I did when I was dx with Epstein Barr, ,many years before….horrible sore throat and crippling fatigue. this is the way all relapses have started with me…the sore throat first…..he did blood work , didn’t think that’s what it was but would test me anyway. I just got the call and was told normal is around 15, my levels are over 600….how does this happen,? why? it’s link to cancers has me very uncomfortable now…I had lung cancer removed and have been clean for 5 years…..can stress, bring this on? a head cold?

  83. Erin says:

    I am in a reactivation now (and I had to demand the test to “prove” it too). My MD doesn’t really recognize chronic EBV at a valid thing. I’m so frustrated and so tired of being sick and tired. Your story sounds so much like mine (from the chronic step to mono to extreme fatigue). I hope hopeful your experience can help me. Thanks for writing about it.

  84. Laura says:

    Hi Elizabeth. Thank you for sharing your story. Five years ago I was diagnosed with Lyme disease and 4 other confections. I had been dealing with crazy symptoms for 10 years prior though. So I was turned away by many physicians telling me that I was fine. ( ugh) I had a foot operation that I never needed to have, my fitness career came to a halt as well. 2 years ago I was in remission and loving life, playing tennis ,going to the gym and feeling motivated. Then, last year all my symptoms returned when my Dr. wanted me to cut back on my T3 medication . ………After finding a new Dr. ( functional medicine Dr.) I have finally been diagnosed with reactivated Epstein Barr virus.! The fatigue has been ridiculous and I feel like I lost many months of my life just laying around resting. I too found the Medical Medium books and have been drinking the celery juice. I feel it has helped me absorb my thyroid meds and supplements fully. You have a similar story as I do . I danced in college getting my BFA in Modern dance. And then went on to have a career in fitness. All the activity is probably what did me in ,carrying an unknown virus,. I turned a corner this month and I attribute it to the celery juice, adding in more antivirals, insisting on supporting my thyroid with T3 and incorporating endermologie and infrared blanket wraps. The endermologie helped unblock my lymph nodes and the infrared wraps were detoxing and joint soothing. Just this week I reopened my gym membership! While I know I am not in the clear , life is starting to look up. Thank you for access to some wonderful recipes and information. I am imagining many people are going through this undiagnosed……….. glad you are feeling better too!

  85. Jessica says:

    Its been years with EBV. I have read Medical Medium after studying all types of other resources, and it makes sense and aligns with other studies. I have not been able to get a grasp on the virus. using supplements, mostly because of inconsistency. I am excited to study your information.

    • Hi Jessica, Some of it is still a mystery but we can all continue to learn as we go. I post updates on my blog often, so check back and dive into all of the info that is already here. Wishing you well! ~E

  86. Heather says:

    Oh my goodness! I’ve sick for the last year. My doctors have tested me for everything. Lupus, RA, Thyroid…. all negative. Then, like a shot in the dark, she decided to test me for EBV. My labs were off the charts! I still am not sure what they mean, other than they are positive. I finally have a diagnosis…. AND IT MAKES TOTAL SENSE!
    I now have something to work with. And although the information about EBV is a little vague and overwhelming, I’m excited to have something to fight and that it’s not just in my head. Thank you, thank you, THANK YOU!

  87. Regal says:

    Hi Elizabeth, I’ve never been diagnosed with Epstein Barr Virus but I feel that this could be my problem too. I too have hashimoto’s, I never feel fully well, recently been diagnosed with adrenal insufficiency, the exhaustion is debilitating. I have recently read the medical medium and it sparked a thought and now that I’ve read your story, I’d like to get tested. I suspect this is my problem

  88. Rhonda Jolliffe says:

    I just read your EBV update. I have taken a break the past year from Social media/blog reading. Been following you however for sometime and a B schooler through you. I’m a functional Medicine Nurse Practitioner and have some suggestions for you. I don’t see you mention LDN(low dose naltrexone). This has been a game changer for my thyroid and autoimmune patients the past 3 years I’ve been prescribing. If you haven’t checked it out. Please do! The trick to it is finding the right dosing for you. Best wishes on your journey! Warmly, Rhonda

  89. Kristin says:

    Thank you for posting this! I was diagnosed a few months ago with CEBV. I’m working with a naturopath to find the best course of action but so far, it’s been very stubborn and my viral load is still “sky high”. I’m also going in for surgery next week for a full hysterectomy (a separate issue that just happens to be occurring at the same time? The jury is still out on that.). I’m a runner and a very active person. Two years ago my health took a turn for the worst and landed me in the hospital for a week. They said it was pancreatitis but I didn’t “fit the bill” of someone who would suffer from that. With no real answers, they sent me home. For almost a year, I struggled with overwhelming lethargy, brain-fog, and malaise. I lost 45lbs in two months. The doctors could find nothing wrong with me. Finally, I went to a naturopath and she tested my EB viral load… bingo!
    For a while there (and even some days still) I thought I was crazy. I’ve learned to function at the best level possible, but I know I’m not who I used to be. I miss energy and not having to cancel plans because I just can’t get out of bed.
    I ended up leaving my job because I just couldn’t keep up anymore. I took a huge pay cut and found a different company, but it fits my needs better (desk work). The only thing I still do is run. I just completed a 19.3 mile race. I felt great. I’m not sure if when I am running I just defy EBV or if there’s some sort of science behind it (hormones, I’m sure)… but it’s the only thing I have left. I feel like I’ve lost so much of myself to this and I’m tired of being tired. Thank you for showing that things will get better. I needed to hear that!

  90. Patricia says:

    Wow…so many almost identical stories here. I am 62. I had mono in high school. I had a tonsillectomy in high school, after a childhood of chronic tonsillitis and being on penicillin all during my childhood. My spleen has hemangioma’s all over. Doctor’s at UW said it is a mystery and not to be too concerned unless there is pain in there area, which has occurred when one of them burst, which was very painful due to internal bleeding. I have given a name to my personal illness which now occurs on a regular basis in the body as inflammation, sinus issues, fatigue, body aches and pains, bone pain though not as often, feeling like the inside of my esophagus and body are on fire, and recently appetite loss and some nausea…I call it Patricia’s mystery illness. I have recently read the Medical Medium and am preparing to start the protocols given in that book. I want to be tested for EBV, and found your blog while searching online today, for which I am super grateful. I want to be prepared to effectively request testing and get to the bottom of chronic immune issues and food sensitivities and allergies, which are expanding since the 80’s especially after a bout of pneumonia back then, which was very difficult to recover from. It is great to see your blog and recognize the commonalities and know we are not alone on this healing journey. Thank you so much for your dedication and sharing! Patricia

  91. Alexandra Warren says:

    Wow i have just stumble across your blog as i am about to take the Epstein Barr virus in order to reactivate the virus so it can be treated by hoemeopatgic medicine (sepia). My history is identical to yourself hashimoto’s the lot. My thyroid has actually destroyed itself completely now so it was a correct diagnosis which is our difference. Wish me luck as I’ve now just finished dissolving the first dose of ebv virus. X

  92. Jam Mir says:

    Oh Goodness! This is such a blessing for all of us struggling… THANK YOU. I just got my EBV labs back and am trying to make sense of them. My EBV Nuclear Antigen Ab was 127 (ref range 0-21) and my EBV VCA IgG Antibody is 139 (ref range 0-21) I had mono back in 2001… Do u have any insight on these numbers? They seem really high! I have a whole host of symptoms and have read MM… already incorporating some treatments… I also get 2 cold sores every month! Sometimes this seems so overwhelming I’m not sure how I’ll come out of it. It feels hopeless. I appreciate you being so open and sharing ur story. That’s helpful. xo

    • Hi Jam, I’m glad to hear this story helps you! I can’t give specific feedback on numbers and labs, so I encourage you to continue to work with your practitioner and research the Medical Medium book and protocol. I’ll continue to add posts to this series as I have updates. Wishing you well! ~E

  93. Stacy says:

    It was quite a relief to read that there are other people out there experiencing the same thing I’ve been living with on and off for the last 40 years! I had severe mono at age 13, and throughout my life since then, have had bouts that I would describe to my mom as, “feeling like I have a mild case of mono again”. I would have headaches, swollen glands, sore throat, and be extremely fatigued. But most recently, about a year ago, I went to a naturopath who discovered that I had evidence in my bloodwork indicating recent infection, and upon learning my back story (about the mono) diagnosed reactivated EBV. In my case, my liver is the unlucky one! It was swollen during my original case of mono, and is currently not functioning like it should. I started taking a supplemental regimen that helped considerably. But, it wasn’t cheap, and after I felt mostly back to normal, weaned myself off. Unfortunately, the symptoms I experienced before are back tenfold! I am currently not working and living on a small retirement, which means a very limited budget, and no health insurance. I am severely depressed and can’t afford the things I need to get better, really can’t even afford a visit to my naturopath or any doctor. How I ended up in this situation is another story all together, but the fact is this is where I’m at right now. There are days I barely even get out of bed, I can feel the pain in my liver, and can’t eat very much at all. I’m hoping that I can make myself get back to my yoga mat and start practicing again because when I was doing my yoga daily, I felt better than I have at any other time in my life! It seemed the yoga kept the EBV at bay. Pray for me, if you will that I can make myself beat this very nasty virus again, and thank you for letting me have this space to tell the story of my personal experience with Epstein-Barr. It helps me to be able to vent a little bit! I feel a bit stronger already! Thanks!

  94. Kathy Waddleton says:

    Thank you for your article.

  95. Karen says:

    Thank goodness for your blog! You’ve just described my life since 2007. I was 36, stressed to the max and suddenly had EBV. I’ve not been the same since. Every doctor said I was fine. My thyroid was fine until 2 years ago after I totally collapsed. A year later, antibodies were tested and I was told I have Hashi’s. However, thyroid meds have NOT made me feel any better. In fact, it has made things so, so much worse. I was at least functioning prior to being put on Synthroid. It made me anxious and mentally unwell. I switched to Armour thyroid 5 months later and I felt great for one week. Then….I completely crashed. Bedridden for 4 days. I thought it was just a fluke, but no. I continued to crash for 4 days every single week thereafter. I felt better physically and mentally on Armour, but I believed it was responsible for my being bedridden for 4 day each week. I changed back to Synthroid 4 months later and I continued to do the same. Here I am, a year later and it continues, but it’s down to 2 days instead of four. I have NO pain even though doctors put me in the Chronic Fatigue category. I’ve seen two Endocrinologists at Vanderbilt University Medical Center, supposedly the greatest hospital of the south. Pfftttt…right! Same old thing, you’re fine. I’ve had hormone replacement twice….2008 and 2018 which only makes it worse. I went to a different Endo and I am in the process of pituitary and adrenal testing but I suspect nothing will show up as usual! My next step, functional medicine! So, that’s my saga in a nutshell. Thank you so much for your blog. It gives me hope that I can and will get past this! Who knew EBV could be so tortuous and doctors are simply clueless! But I must say when my GP said, “Well, Karen, I don’t know how to diagnose you expect to put you into the Chronic Fatigue category.” I said “Oh, bull&@!? on Chronic Fatigue. There HAS to be an underlying cause!” He said, “Well, I agree with you there.” Doctors know it’s bull. They just don’t know how to help.

  96. Lana D says:

    My 18 year old daughter has been struggling for years with a host of health issues. We started seeing an integrative medicine expert last summer and, along with my many many hours of research and review of medical records I am convinced she also has reactivated EBV. If this is the actual diagnosis after years of testing we would be relieved to finally have a definitive path to follow . I am now looking for treatment options for her. I just want her to feel more like a normal teenager!

  97. Lorena navarro says:

    Over Christmas I just went through a horrible horrible couple of weeks of sickness.
    Body pain, arthritis pain, horrible rashes that came and went, swollen eyes, pain in my abdomen, chills, confusion, headaches, intense fever, exhaustation….didnt know what it was and I was going crazy because after many tests nobody could tell me what I had..lupus, lyme, influenza, a mosquito bite virus..the worst is people close to you not trusting

  98. Gemma says:

    Reading your story I thought I was reading my own life story! Tonsils out at 15….mono in the 6 months following and Then thyroid issues with hashimotos. I get a couple of times a year where my fatigue is delibilitating with sore throats and raised lymph nodes. I have emailed my dr to test for chronic epc. Thanks for sharing!

  99. Deb says:

    I felt like I was reading my own story when I read your blog. I, too, had strep throat MULTIPLE times in adolescence, with more antibiotics I(sometimes double doses for 60 days at a time), than I care to remember. When I was 15, I contracted Mono and was so sick my high school dropped me out because they weren’t sure if I would be returning. I can relate to all of your symptoms, including difficulty walking up steps. At its worst, I couldn’t lift my legs without using my hands, and couldn’t say more than 2 words without being winded. Recovery was not easy. At 17 the female related problems started–cysts, tumors, pre-cancerous cells on my cervix..the list goes on and on, resulting in multiple surgeries over the years. Not to mention, my gut has suffered tremendously 🙁 I assumed my immune system was compromised due to all the illnesses as a child, but I did not put 2 and 2 together with EPV (nor did ANY of the many doctors I saw over the years) until I recently read Medical Medium. I actually cried on the plane as I was reading the first part of the book, I finally felt validation that I wasn’t crazy. I believe I recently had a reactivation of EPF with a horrible virus that took over my skin. I have a fabulous Naturopath, and I’m going to do my first Ozone therapy treatment in a couple weeks and am happy to hear it helped you. My dermatologist said the treatments changed her life as well. I’m 53 now, and very health conscious. I’m looking forward to finally feeling GOOD, it’s been too long. Thank you for sharing your story and for all that you do!

  100. Tanya says:

    I just came across your page by googling activation of strep throat after doing liver cleanse …tonsils removed.
    So I am a in my late 40’s and had a similar journey as you. I suffered strep throat 4-6 times a year all through my teen years, it was crazy ….and I did multiple rounds of antibiotics ugh! By the time I was 21 I was told I needed tonsils removed. I was 21! Can you imagine ! I was 21 when they removed my tonsils! But once removed I never suffered another sore throat in my life!
    Ok I retract that ! Back up 2 weeks….I just did medical medium 3 6 9 liver cleanse in his liver rescue book and on day 10 I woke up at 3 am with the worst sore throat ever! Within days white spots appeared and I felt like I was swallowing razor blades!!! Omg what happened how did this happen ?? Have I been storing this in my Body all this time ??
    Took me 15 days to get rid of strep naturally and I’m finally swallowing without pain! It was pure hell!
    My diet has been 8 years with a mix of paleo, dabbled in keto,nlow carb, plant based paleo but still on low carb end….etc….and then the last two years I went full in medical medium …..but I’ve never had any significant shifts till I did his liver rescue 3 6 9. Prior to this I did thyroid rehab. Which didn’t really do anything for my weak thyroid.
    Would love to hear your thoughts on this above journey ? Thank you kindly

  101. Jen Miller says:

    It was as if I was reading my own story….complete with the tonsillectomy, antibiotics…..almost word for word. I just did testing this week and my numbers were over 22 and the EBV viral Capsid numbers were over 750. I am not sure what they all mean but knowing that you have been down this road is helpful. I need to find a great practitioner which has been my biggest challenge. Thank you for sharing your story…gives me hope!!

  102. Chris H says:

    My wife has had a rough few years due to mysterious illnesses. 6 years, no answers. Long story short…We finally saw a wellness doctor and several EBV tests were done. The levels indicate that she’s had a previous infection as well as an acute/recent one. Her VCA IgG came back at 421 U/mL ! (that was 10 times what your level was!) I’m very concerned for her. We are still waiting to hear from the Dr. as to the next step but I was curious…Have you heard/seen levels like that before? I can’t find anything on the internet as to actual numbers on what is “bad/an emergency” or a number that should be concerning. The only thing I find is the baseline number of >21 U/mL= positive for EBV. Just wondering if you have any info or advice to get a piece of mind before we can get to talk to the Dr. (you know how long that can take sometimes)
    Thanks for anything

  103. Kay Frances says:

    I could barely get through the first few paragraphs without shedding a few tears. At 43 years of age I just found out that I also have this and it explains so much in my life. I am in complete disbelief and believe that this may be the reason I had an extended stay in the hospital back in sixth grade. I cannot believe my family would never tell me this and have had to go through what I have had to go through. I wouldn’t wish that upon anyone and wonder what to do now. I wish I had someone like Elizabeth to talk to about this personally as I think that I could shed some light on this terrible lifelong illness. Thank you.

    • Kay, thanks for sharing with us. EBV is still a mystery to many but we can all take steps towards healing, even though we don’t have concrete answers. The Medical Medium’s books and my EBV blog series (all linked above) can help set you in the right direction. Sending you healing thoughts! ~E

  104. Rose says:

    This was a very interesting read. I came into Spring of 2018 feeling odd. I was exhausted, weak, muscle aches, blurry vision, swollen lymph nodes, etc. I had about every test under the sun completed, with no answers. I basically thought I was dying. My blood test for mono showed a recent infection. Of course, the doctor was more willing to chalk it up to a “weird virus” than EBV re-activation. I started de stressing, paying attention to how I was feeling, and taking vitamins and supplements like crazy. It is horrible feeling knowing something is wrong, and feeling like traditional medicine is catorgorizing you as “crazy” or “obsessed”. I still have anxiety from the whole ordeal, but overall feel much better!

  105. Ayla says:

    I am so thankful to have found you! I have hashimotos that has been out of control despite taking Armour, healthy diet, exercise etc. It seemed over the last decade the healthier my lifestyle became the sicker I got. I was just tested last week and diagnosed with reactivating EBV. I feel awful, but feel grateful to start to heal. Where can I get more info from you!?

    • Hi Ayla, so glad to have you here. Read the other posts linked in this series (above) and I’ll continue to post on the blog as I have updates. You can also sign up for my newsletter for subscriber-only stuff! Click Start in the navigation menu. ~E

  106. Courtney says:

    Hello, I was diagnosed with reactivated ebv 9 months ago. I haven’t been the same since. For 2 years before i was diagnosed i was getting sore throats and everytime I got a sore throat my vulva became red a sore. The doctors would give me a zpac and it would go away for a few months and then come back. So I was diagnosed 9 months ago but no longer show an active infection. I still have a sore throat on and off an bad post nasal drip and tonsil stones. I an falling into a depression bc i miss going to the gym and going out with my husband. The doctors dont know what to to tell me. I am having my tonsils out in 2 weeks. I am on a zpac right now bc the sore throat was so bad. I’m looking for any advice you have. Hope to hear back from you!

  107. Lauren says:

    A year ago, I was incredibly tired but chalked it up to being a Mom to 3. My Endocrinologist tested me for EBV and it came back positive. I didn’t think much of it and he said that it will just run it’s course. Fast forward to today and I saw my gynecologist. I mentioned how I have symptoms of a low thyroid but my tests always comes back as negative. She looks up my previous record and sees that my body was fighting the EBV and I should retest. I just got my results back and my EBV is still positive. I still need to get ahold of my doctors to get more answers. But here’s the crazy part…I just returned Medical Medium Foods back to the library today. Unfortunately, I didn’t have time to read it and I couldn’t renew. I’m just going to buy it! Also, I’m so glad that I found your blog. The first google searches, had me believing that I have a death sentence!

  108. John R says:

    About two years ago, my beautiful wife was diagnosed with breast cancer at age 29. Unfortunately, she passed away a few weeks ago, days before her 31st birthday. While taking care of her and our young baby, I started feeling terrible myself. After tons of my own scans and doctor visits, I was finally tested for mono and sure enough — reactivated mono. — likley from all of the stress. Numbness in toes/hands/randoms spots, terrible stomach issues, fasciculations, blurry vision, new red meat allergy, and more.

    I went heavy on supplements (curcumin, I-Lysine, spirulina, magnesiu) and it really helped. Plus early on the probiotics really improved my gut.

    Excited to read the rest of your blog and try to keep EBV from ever coming back again. My copy of Medical Medium also arrived a few days ago, so I am sure that will be a reassuring read.

  109. MB says:

    Thank you so much for these posts! I have reactivated EBV and finding quality information and stories has been a challenge. With that in mind, do you know anything about getting pregnant and having reactivated EBV? Or where to find quality information? Thank you! So glad I found your site!

  110. Danielle Walter says:

    I am currently going through almost the same issues. I had an active EBV back in June. I was tested, along with thyroid, B12, and a few others I can’t remember off the top of my head. The reason for the testing was due to major fatigue and my 4 yr old tested positive for it too. Fast forward to November, I have had a sore throat for a month and extreme fatigue again. So I was retested for EBV and it is currently active. I also asked for autoimmune testing. My Rheumatoid factor came back positive. Now I sit and wait to see a rheumatologist. I am only 36yrs old. I am a mother of 2 young children, which has been my excuse for the exhaustion. But recently i’ve noticed how bad it is. I’m a relatively healthy person who can walk for HOURS. My husband and I recently went on a business trip to Orlando and walked around at Disney Springs. After about an hour I had to sit and rest… and that was after pushing myself till I just couldn’t go anymore. This is very frustrating! Especially when you do not have a PCP who wants to really help.

  111. Becky says:

    Hi…thanks so much for this great info! I have had re-activated (chronic) EBV for over a year now…so when I read about stomping your feet like a baby Elizabeth if your bloodwork comes back I laughed because I feel the same-my #’s have yet to budge. The EBV has led to me having an auto-immune disorder known as dysautonomia (basically my respiration, blood pressure, and other things that should be controlled by my automatic nervous system are all messed up)-I am thankful to have found a good neurologist that was able to put a name to all my weird symptoms. My first question is if you know if when EBV is chronic if it’s still contagious? Second, wondering if anyone has had any improvements from using a Bemer mat? Thirdly, any improvement from using an infrared sauna? Lastly, maybe I missed something, but is there any success (complete recovery) stories on here and if yes, what was the thing that helped the most? Also, I wanted to add something I didn’t see on here (maybe I simply missed it), but a tx that is supposedly helpful (I have yet to try as it’s not cheap) is major autohemotherapy, also known as blood ozone treatments. I’m currently using l-lysine, purified silver, lauricidin, spirulina, liquid zinc, molybdenum, and Acyclovir Rx (and completely clean diet including no nuts or chocolate) that I’m doing does anything.
    P.S. For anyone taking any other kind of monlaurin-lauricidin is hardened pellets you swallow w/ water-I had envisioned it being similar to coconut oil so procrastinated switching, but would encourage switching as it not only works better as previously stated on here, you also get more servings from each bottle.

  112. Kate says:

    Yes! Years of fatigue, thyroid meds that I was later taken off of, the feeling that all the doctors just thought I was some hypochondriac, finally to a diagnosis of reactivated EBV. I cried for validation that I WASN’T CRAZY! Now I’m working with my naturopath but still feeling run down, so looking forward to hearing other people’s success stories. Thanks for sharing!

  113. Terra Higdon says:

    I have this same experience. I got tested last yr and had reactivated ebv >70
    Reactivated ebv igg >600
    I have been sick most of my life and treated with antibiotics.
    I started getting real bad sick again the first of Oct and currently still feel bad. I started last week going to an immunologist.
    My husband saw the book medical medium and ordered it. And what do you know..ebv!
    I was researching this morning when I saw your article starting reading and what ya know..your battle with ebv and discovering medical media. I need help bad. I had to take a 2 week absence from work and I am so exhausted but I have to go back this week. I am an rn at a hospital. Go figure.

  114. Renee says:

    So fun to see EBV getting more attention – thank you for sharing! I have had a rough round of mono and 2 “re-activations.” It seems to re-activate every 4 years for me. The first time I was dismissed by several doctors saying it wasn’t even possible for EBV to reactivate. I saw so many different specialists and went through so many labs and scans to see if something else was going on with my body because it hurt and I didn’t feel like myself. I felt crazy. On my second reactivation I refused to see any doctors other than a naturopath- she tested my antibodies and confirmed my body was fighting the virus again. I read the medical medium and at least felt more support and understanding that round. Unfortunately, you can’t do much other than wait for the virus to pass through. I would love to hear more from your experience and how you get through the fight at the time and how to prevent it from coming back and how to prevent getting into the level 3 and 4 issues discussed in the medical medium.

  115. anne says:

    Hey Elizabeth,
    Thank you so much for sharing your wisdom.
    I was diagnosed with hashimotos about 2 years. Has been an amazing journey of self love and nourishment. Although firstly a lot of disempowerment through the conventional medical system… The medical medium seems to keep popping in to my life at different times. Firstly a friend of mine introduced me to the hashimotos EBV link. I had mono about 8 years ago! I recently got retested for EBV out of curiosity as I have been working with Kambo which is amazonian frog medicine that people have eradicated EBV from!
    Although I still have EBV and reactive to IgG, IGM and EBNA IGG, my thyroid levels are also out of whack.
    You amongst others give me hope that we can heal our selves. I am going to continue to work with Kambo with the aim of also eradicating EBV and my thyroid symptoms will normalise and heal.

    • Thorge says:

      Hey Anne,

      I am also currently working with Kambo to treat EBV (and the thyroid …).

      What was / is your experience? What did you learn? How do you think about it?

  116. Jessie Forbes says:

    You mention you’re from the northwest, me too! Do you mind sharing what naturopath you see? I am having a hard time finding. Thank you in advance! ❤️

  117. Peggy Laney says:

    … it started when I was 20 years old. I got strep throat 4 times in one year. Finally, they took out my tonsils. What an ordeal. I was still drugged and they sent me out the door as fast as they could. I felt like cattle. I slept for nearly two weeks straight. Then at 22, I got mono. Then at 24, had reoccurring pain in my throat. Kept going to the doctors complaining about it but they could never find anything in lab tests. They diagnosed me with Eaccols syndrome. Then T 25, I was diagnosed with severe reactive hypoglycemia which took a huge toll on my self esteem. My short term memory suffered as did my ability to speak and see clearly. But, The first time I felt the symptoms I do now was in my late twenties. I felt like I had a fever, and a general feeling of malaise. I felt kind of shaky and my head felt a strange pressure in it. And the fatigue always sent me home to bed. Then over the years, the these symptoms would show up in my life after certain triggers, particularly stress and poor diet. I would get symptomatic about 3 times a year and would stay home from work in bed for two solid days… sometimes I would sleep deeply and other times I had inflammation so bad that it disturbed my sleep, making matters worse. Then in 2012 I was diagnosed with low thyroid and severe anemia. In 2014, I had a big adrenal crash. I felt like the living dead. It was due to a high stress job, so I quit. Since then, I discovered The Medical Medium. i too cut out eggs but once I reintroduced organic eggs, it was fine. Of course doctors can’t find anything wrong with me accept the last time I went shortly after a very symptomatic week. My inflammation markers was very high as was my antibodies for a recent EBV infection. What I would like to know is how high your point wer went your doctor finally said WTF? Mine was 500, and according to the test results, 89 is the high in normal range. The hardest part is that to everyone around, I don’t look sick, maybe tired. I cry sometimes because I just want to be normal.

  118. Aubrey says:

    A few months ago, I had a colonoscopy done because I have Diverticular Disease and I was having some discomfort on the left side of my abdomen. The colonoscopy came out fine but the doctor wanted to run an additional CT Scan with Iodine. After having this additional test done, two days later my salivary glands swelled up. We did some research on line and thought I had iodine mumps and we presented this information to our family physician. At first they treated it with antibiotics and then they treated it with Prednisone for 2 weeks. The glands came down some but not completely. Also during this time, I had noticed that my mouth was dry and had difficulty swallowing so I started on Biotene as I read about Sjogren’s Syndrome and dry mouth. This enabled my salivary glands to start working again and no longer have the dry mouth. Also I have dry eyes but this may be another symptom of having Lasik surgery years ago and then Cataract Surgery done about 5 years ago with a touch up to both eyes. The doctor sent me to an ENT and he was absolutely no help and pretty much dismissed me about everything I brought up. It’s been 4 months since the original CT scan and my glands are still swollen and also I will have some pain from it and burning and tingling feeling running up my face. Prior to seeing the ENT I asked the doctor to see if he could run some blood tests on me and had indicated that I was extremely tired which is very unlike me. He said sure and ran a CBC panel and also decided to run a test on Epstein Barr. As you can see from the results below, I have a High Value of the IgG results and normal range for the IgM results so in essence, I have the reactivated Epstein Barr Virus.

    I am still not feeling like I normally should and have to rest very often. I have found taking a B Complex, Vitamin D3 5000 IUs, L-Lysine has helped. I am looking to get the Monolaurin which I understand is very helpful. Can you provide me with any additional insights on this disease as I don’t want it left unchecked/untreated and I understand you can develop cancer. Also my primary care physician has no interest in re-running these tests to see where my levels are. Shouldn’t they still follow-up with me on this? Why have they dropped any interest in my care? I have lost my faith in doctors and feel they are not interested in my health and well being.

    Component Your Value Standard Range Flag
    EBV VIRAL CAPSID ANTIGEN IgG 468.0 U/mL 0.0 – 21.9 U/mL H
    EBV VIRAL CAPSID ANTIGEN IgM <10.0 U/mL 0.0 – 43.9 U/mL

    CBC High Results

    MPV 11.1 7.5 – 10.5 H
    Neutrophils 76 % 43 – 72 % H
    Low Results
    Lymphocytes 13 % 17 – 44 % L

    • Anonymous says:

      You have high IgG, which indicates that you (like 90% of adults) have been infected with the Epstein-Barr Virus at some point in your life.

      Your IgM is normal, which means you are not suffering from a recent infection. You do not have “reactivated” EBV. IgM spikes in the 8 weeks after infection and then returns to normal.

  119. Sharon says:

    I’m so glad I came across your page. I too have been suffering with Fibromyalgia for years and it’s got to a point I’ve had to leave my job after 20 years. I am reading MM books and I lightbulb went on. I was seriously ill when I was 14 and they said it was scarlet fever but I was never sure. I have always been tired and struggled. My blood tests come back normal which is so frustrating as I feel ill all the time. Which in turn has an effect on everyone else and you end up on a downward spiral. I’ve adopted some of MM protocols and don’t have gluten etc. I just feel the doctors are on the wrong path and at 47 feel my life is ebbing away x

    • Hi Sharon, thanks for sharing your story here. Don’t give up. I know it’s difficult but just being here means that you can heal. Keep following the Medical Medium’s protocols and makes self-care your top priority. Food can heal, and life can get better. You are in control even if it doesn’t always feel like it. I wish you well! ~E

  120. PAMELA says:

    WOW! I have not been feeling well for a while now and all lab tests are normal. My doctor says “you are the healthiest patient I’ve seen all day!” Doesn’t leave much room for saying, “yeah, but I just don’t FEEL well”. Thankfully, I found a wonderful functional doctor who listened patiently and performed a number of tests on me. One day she said, “I think I have found out what is going on with you!” She showed me the test results for EBV and mine were off the charts! Then she told me she had reactivated EBV a couple years ago! God sent me to the right doctor!! She started me on two weeks of Valtrex (longer is not safe) and also started me on the monolaurin. I am only one month in and am hoping as time passes to feel even better. In the past I have had viral thyroiditis (thought I was going to die) and have also had labyrinthitis. Just wonder if EBV is responsible for either of those. Thank you Elizabeth for sharing your story and all the wonderful information that you bring to us. I am so grateful to have found you! Keep up the good work and best to you in your fight against EBV!!

  121. Cindy J Kuhn says:

    I am experiencing Epstein Barr symptoms now and have been for over 10 years. The symptoms were coming and going but now they are staying. I am going to a Natural Pathetic Doctor in Cambridge, MA who is treating me. I just feel so tired, drained and depressed so much of the time. Reading this blog was good for me but I have to say I really just want to get better. I have had to leave my teaching position as a 7th grade science teacher due to not feeling well and not being able to think well so much of the time.

  122. Lindsay says:

    I had severe mononucleosis three years ago and I would say I was ill for the two following years .I have now had a two week fever with no other symptoms except the dreadful fatigue I had with mono.To date they have given me a wide spectrum of tests ,all of which have come back negative.Yesterday in the ER I actually found a doctor who was willing to test me for Epstein-Barr again as the others I have seen have scoffed the idea of a reoccurrence.Will get results later this week

  123. Lisa Marie says:

    Thank you for your information! I’m 42 years old living a crazy packed exec life in NYC and have had EBV/Mono reactivated now 4 times since my 30’s. Currently down for the count and trying all things to get myself back to 100%. I last had this 4 years ago and since then have been overly conscious of listening to my body, eating well, and sleeping. Hectic and stressful work life has gotten me off track in the last year especially and I knew instinctively it had hit again. Shutting down is not easy, in fact miserable. Really appreciate your blog as there’s so little information out there. It’s confusing.. I told my boyfriend not to read up on it online or he’d think I am six feet under ground! Thank you and looking forward to your cooking tips.

  124. Jessica Day says:

    I just received test results that I am positive for “re-activated EBV.” I requested the test from my naturopath after Hashimoto’s protocol (diet, rest, supplements, synthroid) yielded little improvement.

    Thank you for sharing your experience. I will be combing through your series for information and support. You are an angel.

  125. Teresa says:

    I found this article very interesting as I was told I had tested positive for EBV when the hospital ran a blood panel when I had to have an emergency appendectomy. I was 19 at the time and it was more or less “casually” mentioned that I had EBV show up. I recall when I was 17 that I was loosing weight for no reason and tired easily and was advised by a specialist that my thyroid had gone through a rapid “up and down” but had regulated. My thyroid levels are checked regularly and are normal. In my late 20s I had trouble conceiving and went through several treatments and became pregnant on my third attempt at IVF. Then had three natural pregnancies after. I still battled depression (since 15) joint pain, inability to focus and tired from the moment I awoke. I was then diagnosed by a Rheumatologist with fibromyalgia. Another medical mystery that is often not recognized. Approximately 8 years later I was diagnosed with Type 2 Diabetes. Three years ago at the age of 52 I left work as a legal assistant as a result of my medical issues. I see my family doctor and a psychiatrist monthly. I have been “interviewed” by insurance companies doctors and I still do not have answers nor after several changes in meds feel any better other than the relief of stress from working. Curious if all this started with EPV.

    • Teresa, thanks for sharing your story. It might be worth reading The Medical Medium and/or exploring the root cause with a naturopath or doctor who specializes in functional medicine. Wishing you well! ~E

    • Alicia Konopka says:

      I’m so glad I found YOU! And, this blog! Last November, I began having severe vertigo. This continued for 4 months, then lead into lightheadedness. I also had a bad case of mono as a child, but didn’t think anything about it becoming reactived. I have had every test under the sun. All normal! Until I went to Naturopathic a month ago. She discovered reacent reactivation of EBV, sluggish T3, and low ferritin. I’m just starting my path to recovery ( after a year!). My 3 biggest problems are dizziness, tiredness, and aches. I would love feedback on anyone who has a treatment for dizziness! That’s my biggest annoying feeling!

  126. Page says:

    My daughter had mono when she was 4 and again at 14 and in my opinion has always seemed s little off. Thanks for sharing and validating my thoughts.

  127. Patti says:

    I finally found a medical doctor that tests for everything a year ago. In addition to figuring out what was causing my digestive issues and weight gain, my EBV was high. I was on the path though to feeling better than I have in a long time until a couple of months ago. Tested again and my EBV level was 600 and my thyroid numbers were off for the first time. I had strep a lot as a kid but never mono. Thank you for talking about EBV, I still have a lot to learn.

  128. Rachel says:

    I know I have the reactivated Epstein bar, where is info on what u did to heal it?
    Did u experience insomnia too?

  129. Karen Gorentz says:

    Thank you so much for the valueable information. My family has been hit hard with EBV! My daughter was diagnosed with EBV in grade school. She too felt lithargic, sleep, tearful, not energy..etc! She spent a week in the hospital before figuring out what the problem was. At that time our pediatrician told us that EBV was the most perplexed virus with no cure. He also told us that is was some how related to lymphoma cancer. He was correct, my daughter was diagnosed with lymphoma at the age of 25 , just 3 months after giving birth to her first child. She is In remission now, healthy and pregnant with her 2 child. I found that I am also positive for EBV after having mono 5 years ago at the age of 50! I am anxiously awaiting your next blog to find out more information about beating this virus. Thank you again for sharing your experiences with others. We will all benefit from your help.

    • Hi Karen, wow. I’m so glad your daughter is doing better now. And yes, EBV is linked to come cancers like lymphoma. There isn’t a known cure, per se, for the virus, but there are some natural antivirals available that hopefully can help. Wishing you well! ~E

  130. Michele York says:

    Thank you for your blog post. I’m struggling big time right now with my hypothyroidism and it seems to be causing other issues such as anxiety and tinnitus. I’m currently almost 2 weeks in to a new dose of levothyrox, some days are better and some days are not. I’ve been hypothyroid for 17 years or a little more and have never experienced these kind of issues. And I never had strep/mono as a kid. Not sure what’s going on, thinking it’s time for either a naturopath or an endocrinologist. I need some relief soon.

  131. Ingrid Pimentel says:

    Hi Elizabeth! So much valuable information in this post. I am waiting anxiously for the next one about testing and treatment. Thanks for your awesome work.

  132. Jen says:

    Thank you for this post. When I was reading the part about your chronic strept as a kid, then needing a tonsillectomy, being exhausted all the time, and then being diagnosed with hypothyroidism in your teens, I thought I was reading my own story. I never had (or at least was never diagnosed with) mono, but I wonder if I should be tested for antibodies. Thanks for this post. VERY much looking forward to reading your follow up.

  133. Noelle says:

    Have it and have battled it on and off for years. Have had it deactivate when I run myself down. The medical Medium is a great book. I have read it. I find that a variety of supplements and food help best. At times when it really gets me I know when it’s time to rest and refuel

  134. Erin says:

    I’m exhausted. This has been a long road. My autoimmune journey began when I was 17 and diagnosed with hepatitis A. Not sure to this day that’s what I had. Since then I have had numerous food allergies, bouts of strep, miscarriages (anticardio-Lipen antobodies), etc… I see a functional medicine dr and test positive for Hoshimotos (not sure meds make me feel better… still exhausted), Epstein-Barr and now just had a positive Lymes test. In early May I had a severe allergic reaction to a sulfa antibiotic from my first bladder infection leaving me with a horrible fever and rash/blisters and then went into an autoimmune response called “arthritis-virus” where I had severely swollen joints… I couldn’t walk or even brush my hair. I spent this summer on prednisone and now I am healing but a mess with numerous questions. I feel more empowered to heal than ever but also more confused. Thanks for your work. I will continue to follow and learn. FYI I appreciate your opinion on the Medical Medium. I’ve learned a lot but am left with so many questions.
    Here’s to healing! 🙏🏻💕

  135. Jessica says:

    Thank you so much for your post. I’ve been feeling off for the last couple years and just chalked it up to stress. I’m a single mom haha. At any rate I finally pushed for the doctors to do more testing when a 70 year old man beat me up a hill during one of my jogs LOL. They found I had reactivated EPV and all the doctor told me was to get plenty of rest and eat a healthy diet. I’ve had to do my own research and it seems that EPV usually reactivates in people with a immune compromised system, which means there may be other underlying issues. So thank you for your story and advice, I’ll definitely be reading Medical Medium and seeing what advice the author has to offer. Take care and good luck with everything! Can’t wait for your next post 🙂

  136. Diana says:

    I’m exhausted today. I read this article and it’s everything I’ve been dealing with. I had a hysterectomy over a year ago and I just can’t do cardio yet. I used to be able to push through.

  137. Cyrina Anthony says:

    Yes all of this resonates with me! Since I had an onset of Mono at a late age, in my 40’s and I am 61 now I just realized that I had a bout with strep throat prior to the mono, no one put that together until now reading your blog.
    Ever since that I haven’t been able to get my energy level back up. I am a high functioning individual but wow I get exhausted and haven’t wanted to face it so I push forward as always but I am fatigued all the time.
    I did mention EBV to my GP but that was pushed aside. They test for thyroid but comes back not a problem and I keep telling her that there is something going on there also this auto immune condition rings so true for me.
    I look forward to hearing about what I can do about it now and feel better already.
    Thank You!

  138. Kelly says:

    Two and a half years ago I was beyond sick. Went to three different hospitals for months. Every test known to man. Started a new primary and I asked for a test for EBV. Two of my results were in the 300s! I’ve never had Mono in my life, I did have strep a lot as a child. I love the medical medium.

  139. Roxanne Moschetti says:

    My 2 year old Just tested positive for Epstein Barr and active mono. I tested positive for previous infection on a positive negative type test at Kaiser. I want to Find a naturopath doctor in the LA area that can help us. Any recommendations? Also, I’ve read the medical medium and there are so many supplements listed for EBV that I don’t know where to start and can’t afford to get them all. Is anyone familiar with the top supplements that Have been found most helpful?

    • Hi Roxanne, I’m so sorry to hear that. And at such a young age. I don’t personally know any naturopathic doctors in the LA as I don’t live there. I would recommend searching online and reading a lot of reviews. Sometimes it’s a frustrating process to find the right place—I’ve experienced that. If you visit someone and they can’t help, it’s ok to find a new doctor. And, I know that the list of supplements can be long! I don’t take them all, I’m in the midst of writing two more posts in this series to share with everyone and that’s coming soon. I don’t have any experience with helping children (especially as young as two) so my recommendation would be to consult your child’s doctor before using any type of supplement with him/her. Sending you tons of love to find the right doctor who can help. ~E

  140. Carolyn Edwards says:

    EBV positive since being ill with virus when I was 17 (57 now). Need more sleep than most, wake up tired, just accepted as part of my life. I have a low white blood cell count compared to the average and wondered whether this could be attributed to EBV too.

    • Hi Carolyn, the good news is that there are things you can do. I’ll keep sharing so hopefully something can help. I’m not sure what can and can’t be attributed to EBV for specific people, but if you are able, find a good naturopath and they may be able to help. Wishing you well! ~E

  141. Debbie biggan says:

    Wow. What a great post ❤️Thank you for sharing … I’ve been into his books and podcasts for a bit now … my family was all diagnosed with Lyme. Husband and two kids .. I now believe it’s been the ebv all along !!! I was recently diagnosed with mold toxins and then my shoulder froze !! Hmmmm shingles possibly? My doc thinks I have three heads … as I brought this all up to her …oh well ?? My daughter who is a holistic nutritionist as well as Anthony Williams have been so helpful.. . Diet … diet … diet !!! And good supplements ! We’ve lost my husbands side of the family due to them bullying us about having Lyme 4 years ago … the journey has been all holistic .. and we are so thankful for that … as whatever they all were battling … things are in a good place … my side of the family has been so supportive and helpful .. no matter what .. I love the medical medium and his knowledge he is sharing is helping so many … be the voice to help this spread … it’s making its move and it’s beautiful ❤️Thank you for your guidance ❤️
    Dale, Deb, Chanelle and Tanner

    • Hi Debbie, thank you so sharing your story! It’s crazy to me that some people still don’t understand that Lyme is a real disease. There is a lot of folklore out there but Lyme is real and affects a lot of people. EBV is often a co-infection to Lyme. And, Lyme risk is getting progressively worse especially with the deer ticks in Maine. Even traditional medical doctors are starting to recognize it. Continue with the Medical Medium books and, if you can, find a naturopath in your area who has an expertise in Lyme. You could also come on my Sanoviv Retreat and have an integrative physical as they can diagnose and treat Lyme (find Sanoviv retreat in the footer of my website, my comments don’t allow links) 🙂 Wishing you and your family well! ~E

  142. Jennifer says:

    Wow! I could say that a few more times! I was stunned and overwhelmingly grateful to read this post. I suffered from severe mono when I was 13 and if I am being honest have never truly recovered. Now I believe I know why. As a fellow IIN graduate I have always been into health and wellness, funny how your intuition knows how to keep nudging you along until you find the answers. I ordered Medical Medium and it made me want to cry, in both happiness and from being scared. I am now almost 53 and excited to get on the path of ridding myself of this nasty virus. What has really pushed me in this direction is trying to help my son who is 28, and basically has all the symptoms of stage 4 EBV. He had a terrible bout of strep at 14 that had him out of school for a whole quarter. Writing this is making me cry but now I have more information and will be able to steer him, and myself, onto a real path of wellness. Thank you Thank you Elizabeth. I am very much looking forward to your upcoming posts

  143. Jessica says:

    This could not come at a better time! I’ve been feeling terrible despite a healthy lifestyle & everyone thinks I’m nuts! I have almost no estrogen or testosterone and high EBV. I was never diagnosed with mono but also had strep continuously during childhood. I can’t beleive this might finally be the answer!!

    • Jessica, so glad to hear that this may be helpful. Feeling off with no answers is a terrible feeling! Stick with me for the next few posts and I’ll keep sharing as much as I can. Feel well! ~E

  144. Sarah says:

    Thank you so much for sharing! I have hypothyroid after having my daughter and I’m trying to get to the root cause. You have set me on the right path!

  145. Lisa Fallon Mindel says:

    Yes Liz, I have totally experienced this. I was diagnosed when I was 20 and now 35 years later, last summer felt I had some auto immune issues (with multiple symptoms). As a plant-based nutritionist and athlete, I am very aware of my body .. After research and many blood tests for each AO disease, (which all came back negative) I realized it had to be my EB coming back disguising itself as a handful of AO disorders. Reading Anthony Williams books now and totally in agreement. Thanks for coming out and talking about this. I am supporting you in this journey and wish you health.
    PS: Met you at Sweet Retreat 🙂

  146. Dana Ruch says:

    Omg yes yes. I was told I had mono 3 times as a teen and in college but obviously it was just once and reactivated. 2 years ago, now in my 30s I saw a naturopath to see why I was so exhausted and she said my EBV levels were sky high and she gave me tons of herbs which I found helpful but expensive to continue long term. Now 2 years later I am feeling ultra fatigued and suspect that to be the cause.

    • hannah says:

      Hi Dana, what herbs were they? I am once again fighting ebv and am just so fed up

    • Dana, thank for sharing, and so sorry to hear you are so fatigued. It feels so awful to have low energy levels and not know why. I’m writing two more posts on this in the next few weeks with testing and treatments. I’ll include what I take in case it helps others. Feel well! ~E

  147. Patsi Tarantino says:

    I’ve read/still am reading all his books. Do you do any of the protocols he suggests? I’ve been doing everything (except haven’t gotten the guts to do the heavy metal detox yet) and am feeling sooo good. I also saw that you had eggs written on your shopping list. Have you tried avoiding them?

    • Hi Patsi, I do most of what is in his books. I cut out eggs for 3 months last year and nothing changed but I did noticed I felt more hungry after breakfast. The books are fantastic resources and I think every person has to test and see what works for them. I love his simple protocols, and I also love the fact that The Medical Medium doesn’t demonize fruit (in fact, he celebrates most of it!) I think the fear of sugar has really (wrongly) scared people off from fruit. I totally agree and follow the no-processed-sugar way of life, but love his recommendations for fruit. Eggs work for me. But I think doing his protocols strictly at first to see what works for you is a good way to go. ~E

  148. Connie says:

    Thank you so much for writing this. I’m going in for blood work this week related to it. I had mono for 3 years as a kid it just wouldn’t leave my body and I have chronic fatigue, inflammation and my thyroid is starting to slow down as well. My nervous system is weak and my body aches everyday I can’t seem to understand why since the tests are all good other than thyroid and knowing that I have inflammation. I just started reading the book per the recommendation of my reiki healer so I’m starting there. I’ll keep reading to learn more about what you discover and your journey! Thank you!

    • Hi Connie, glad it is helpful! I’m sorry to hear you don’t feel well. Sending healing vibes! And the next two blog posts may help, too. More soon. Keep us posted on how you are. ~E

  149. Kristin says:

    This is amazing! My son is dealing with all of this & we are at the beginning stages of seeking answers & treatment. He tested positive for Mono & his ANA screen tested positive for Lupus. I have friends with Lupus & we were told to seek the root cause of the diagnosis, rather than treating the lupus. She also recommended The Medical Medium. I can’t wait to learn more about the specific tests that you had done as we are meeting with a highly recommended Naturopath next week. All of this is just so pertinent. Thank you so much for sharing your journey Elizabeth! As a fellow IIN Health Coach I’ve been following you for years & always enjoy your content.

  150. Brenda says:

    Thanks so much for sharing Elizabeth. My physician usually tells me I must be “fighting something” when my antibody levels are up and I’m complaining of incredible fatigue. I was diagnosed with genetic hemochromatosis 10 years ago so started avoiding foods loaded with iron and started keeping my feratin level low-ish (I feel best when its at 13). Like you, I still didn’t feel 100% after the initial improvement in energy levels hit a plateau. Eventually I switched myself to a diet free of processed foods, sugars, milk, wheat … I feel 100% better as a result but … not 100%? I’m getting so used to feeling “better”, I’m not even sure I would know what 100% should feel like anymore. I am really looking forward to reading the rest of your story. It would be so great to be able to live with confidence around knowing that I’m doing as much as I can to maximize my health in a natural way.

    • Brenda, thanks for sharing. I know how frustrating it is to feel off and not know why. Posts 2 and 3 are coming soon right after this one (I’ll link them at the bottom of this first blog post, too. (The only reason they’re not posted yet is that I need time to write them! ;)) Wishing you well.

  151. Lauren says:

    I was recently diagnosed with Hypothyroid/Hashimoto’s and for a variety of reasons I decided not to go on Synthroid, as suggested by my Doctor. I’m in the process of re-reading Medical Medium: Thyroid Healing…and I’m working to incorporate the protocols he suggests. What’s bizarre is that even though my TSH and antibody levels are very high-I really don’t have symptoms. I’m thankful for this and figure it’s due to my healthy lifestyle and am trying to be pro-active so that I don’t start to experience symptoms. I’ve never had mono or EBV that I know of…so I’m very confused as to what’s causing my thyroid numbers to be so out of whack-but thankful that I know enough to make lifestyle changes my first line of defense! Thank you for sharing your story, Elizabeth…looking forward to hearing more about your journey with this!

  152. Manuela says:

    I grew up in the USA (Austrian Mother / German Father ) and moved back to Europe (Austria) when I was 14 1/2. This post really got my attention :-). Like you, it all started out with tons of antibiotics as a child due to infections and one of those was indeed strep throat. When I was 15 I had a Tonsilectomy as well. When I was 16 Mono hit me and since then my spleen has been enlarged. When I was 19 and at University my immune system must have been really weak because I developed hayfever really bad out of the blue. Went to a naturopath here in the area a few years later and Candida was diagnosed . Once I got that treated my hayfever got better however was still here. At 27 I was diagnosed with Hashimoto however decided against hormones since I wasn’t feeling THAT bad. At 42, married and mother of 2, adrenal fatigue set in and that was when my thyroid started to flare up again. That was about the same time I read Medical Medium and like you, suspected EBV to behind my issues. I finally saw the similarities with how everything developed – it all started to make sense. My internal medicine doctor, who specializes in Orthomolecular Medicine knew that EBV was probably behind it all as well and tested. The past infection was gone but you could see that it been present again. Since then I have been taking Pregnenolon for my adrenals and a low dose of thyroid medicine and my labs are great again. Am gluten and dairy free, watch my stress levels and make sure to sleep well. The lifestyle change contributed to where I am now. EBV triggered my adrenal fatigue and is responsible for so many issues people have. It all boils down to having a really strong immune system.

    Another really helpful book on Chronic EBV was written by Sigrid Nesterenko – however I am not sure if it was translated into English. Very well researched.. with Natural Protocols.

    I am currently getting a degree at the International institute of Naturopathy in Switzerland as an Integrative Health Consultant.
    Like you, I am on a mission to 1.) get off the meds 2.) put EBV -and Hashimoto into remission and 3.) Help spread the word that we CAN heal!
    Thanks for the passionate work you do!
    Love from the other side of the Atlantic! ~Manuela

    • Manuela, wow! Thanks for sharing. I have a feeling so many other women have stories like ours. Sending you love from the US for healing and light! ~E

      • Stephanie says:

        Wow! Did you share what I needed to hear. It took me 21+ years to get a dx of chronic late stage Lyme disease + Co-infections, a very big mold hit, when we unknowingly moved into a heavily WDB (water damaged building) which exasperated the Lyme disease and nearly destroyed me and my family. Thankfully, through my faith and much wisdom in learning more about health than I thought possible, I survived and am still learning more. I recently went to a functional medicine Dr., in LA, who practices kinesiology and finds underlying viruses through muscle testing. After 25 years of fighting my way through a maze of misdiagnosis, being told there was nothing wrong with me, you name it, I have heard it, my new wise Dr., found not only the EBV, but retro viruses and one other that I would have to look up. I am currently treating with a few herbs, he prescribed and trying to eat broccoli sprouts daily, which help to kill viruses. I also plan to start drinking Cistus tea. Broccoli Sprouts and Cistus tea are two of the most prescribed from a very well known Dr., who treats chronically ill people. I look forward to reading the next part Elizabeth. Thank you for sharing.

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Instead of prescribing what I think you should do, I help you find what works for you.

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