How to Get Tested for Reactivated Epstein-Barr (EBV)

POSTED IN: Body + Health

How to Get Tested for Reactivated Epstein-Barr (EBV) + Why It’s So Confusing

Last week, I shared my story about how after years of feeling tired and treating my low thyroid condition, I discovered that my Epstein-Barr Virus (EBV) antibodies were showing a recent infection—even though it had been over 15 years since having mono as a teen. You can read that post here if you need a refresher.

Today I want to share more about the testing I’ve had over the last two years—plus, why it’s so confusing and frustrating for most people when they ask to be tested for reactivated Epstein-Barr.

First, the medical community is just waking up to the idea that we don’t just get mono once, and that the virus can cause issues for decades.

Previously, and still for some, doctors thought that:

  1. about 95% of the population will contract the virus at some point (still true),
  2. in some people it stays dormant forever (still true), and
  3. some people will get mono from it—but once the acute mono phase is over, there is still a belief that the virus will stay dormant (asleep) forever (this is not necessarily true)

In some cases, it will stay dormant forever after the acute mono phase. But in some people, like me and possibly you, the virus can cause issues throughout life. Again, you can read more about my low thyroid issues and EBV reactivation discovery on the first post in this series. But today I want to focus on testing.

Second, while some doctors and practitioners have long known that EBV can cause autoimmune symptoms or lead to conditions like Chronic Fatigue or Fibromyalgia, most have disregarded this idea. Since new information is still emerging about the virus and the long-term issues it can cause, there isn’t really a standardized test for it. And other practitioners hypothesize that there are actually multiple types of EBV, which makes it even more difficult to test for.

I first read the book The Medical Medium in 2016, and it peaked my curiosity as to why I’d been dealing with low thyroid issues since I was 18 (again, read more about that here.) I was intrigued enough to ask for an EBV test from my naturopath, but didn’t know what to specifically ask for so just got the test that she chose from her list of options. It was still a good test, as it indicated a “recent primary infection,” which was enough to understand that my immune system was still trying to fight the virus even though my acute mono phase had ended over 15 years before.

The health community uses the words “Reactivated Epstein-Barr” for this phenomenon, but I wonder if it ever really “deactivated” in the first place. I think a better word for it might be chronic, however, Chronic Active EBV is a specific diagnosis characterized by persistent infectious mononucleosis-like symptoms. There is a huge population that is living somewhere in between—the persistent infectious mononucleosis-like symptoms are gone, but you never fully recover.

Back to the testing.

I’m sharing these tests with you to show you why detecting long-term EBV issues is so confusing.

However, I feel positive that I at least know why I have periods of time when I feel so tired, because now I can do something about it. It’s also comforting to know what could have caused this thyroid issue. However, the testing is still confusing, and I’m still a little confused about it.

Also, please note that I’m sharing these tests with you just as a starting point. I’m not a doctor and these are just for reference.

My 1st Reactivated EBV Test

September 2016: Testing for Positive/Negative IGG and IGM antibodies.

Elizabeth Rider Epstein-Barr

The image above is my first recent EBV test in September 2016 (15 years after mono), indicating a positive result. My naturopath in Bozeman ordered this test, and to her surprise, it was positive! (Read more about that in my first post in this series.) On this test from Mayo, presence of VCA/IgM antibodies indicates recent primary infection. This was the first indicator that my body was still fighting the virus and was the point at which we started natural antivirals and treatments. Tests that show positive or negative results without values can be frustrating as it’s hard to gauge the severity of the situation, but at least it’s a start.

My 2nd Reactivated EBV Test

January 2017: Follow-up four months after the first test.

Elizabeth Rider Epstein-Barr

This test above was not that helpful and was ordered by mistake when my doctor thought she was ordering the same as the first one. We had tweaked my thyroid replacement dose, so I had to be tested a few months later. I asked her to test the EVB again to see if anything had changed. When the test came back, I realized it was a totally different test than the first.

She mentioned that she must have just checked a separate box, but this one was a good one, too. I don’t blame her or have any negative feelings about it, but looking back on it I should have asked for the other test again, because comparing two different tests isn’t very helpful. And after researching this test more, I realized that it didn’t tell us the entire picture—it says “None Detected” because it was testing something completely different. She told me that the natural antivirals must be working and to just keep doing what I was doing. I actually did feel a little better, but as you’ll see over the next year in the following tests, the antibodies that indicate a recent infection and that my body was still fighting the virus, were in fact, still there.

My 3rd Reactivated EBV Test

May 2017: Five months after the previous confusing test.

Elizabeth Rider Epstein-Barr

As you can see here, this test indicated the same as the first. When I got this one, my biggest question was, “Would this have shown the same thing in January?” This is why it’s so important to follow up and get the same test so you can do an accurate comparison.

My Most Recent Reactivated EBV Test

May 2018: This one actually has number values, not just just positive/negative results.

Elizabeth Rider Epstein-Barr

My previous tests were with my doctor in Montana. I recently moved to Seattle and started seeing a new naturopath. During my intake, she mentioned that she wanted to do an EBV test. As you can see on this test above, it only tested IgG, not IgM antibodies like tests one and three did. That confused me because high VCA/IgM antibodies indicate a recent primary infection. She said she now uses this test because it actually gives a value of the IgG antibodies, and over a certain number, it will indicate if your immune system is still trying to fight the virus. You can see from the result and reference range above that anything over 10.99 indicates a positive result, and mine was over 41.

I plan to keep up with the natural antivirals I take and continue to explore natural and alternative treatment options. You can read more about my treatment protocol in this post.

Are These EBV Tests Even Helpful?

Here’s the bottom line: EBV testing is still confusing for medical professionals, which makes it even more confusing for patients.

Remember that labs are always a snapshot in time, and it’s possible that different values can be detected at different times.

Even though EBV testing can be confusing, what’s important is to remember that regardless of what the results are, you can still take steps to feel better.

If you’ve had even one test that comes back positive, it will most likely be positive for a long time—possibly even for life. Since we still don’t know a lot about the virus, what’s most important is that you focus on feeling good and healing if you feel off, instead of focusing on the numbers on a piece of paper.

These tests are useful in the sense that you may suspect EBV, and seeing the result on paper might spur action to healing, but also remember that the virus can live so deep in your organs that the test might show negative, even when EBV is ultimately the issue.

You can start your healing protocol on your own even if you don’t have the test results yet.

How to Ask for a Reactivated Epstein-Barr Test

Find a naturopath, functional medicine specialist, or healthcare practitioner who is open to exploring the possibility of Epstein-Barr.

Do some research in your local area, and always ask the front desk when you call to make your appointment if the practitioner is open to testing for Epstein-Barr. I’ve found that naturopaths are always very open to this. The front desk can’t give you a consult over the phone, but they can at least provide information as to whether the doctor is open to testing for that sort of thing. You may have to call a few places since unfortunately some mainstream/”old-school” medical practices are not up to speed on this yet.

If I were starting over again with what I know now, I would specifically ask for the positive/negative VCA/IgM antibodies test (tests one and three above) and the EBV Early Antigen D (IgG) test (test four above), because both provided good information. If I recall, that first test was around $45 (on top of the cost of the visit), and I paid cash at the naturopath, so it wasn’t too out of reach.

Only your medical professional can guide you on this and will know what tests are available, so work with them to find the best testing option for you. I will say that I had to specifically ask for this and let her know that I was ok paying the $45 for her to order it. That’s not a price quote by the way, as I’m sure the charges vary by lab and area.

Is There a Better Test?

New technology is always becoming available, and I want to remind everyone that I’m a patient, not a doctor, so you’ll have to work with your medical professional on what tests are available and best for you. My doctors in Montana and Seattle are both amazing, but they did not have any further tests to conduct.

My doctor at Sanoviv specializes in functional medicine and wants to do a test called ELISpot the next time I visit her to understand if I have any co-infections and to understand the EBV more. ELISpot blood test is sent to Europe for analysis and it’s expensive; we would do it for research purposes because we’re both fascinated by it and I have the funds to do it. Since health is my profession, I’m willing to spend on the research, but I want you to know that you do not have to have expensive tests to start your healing. In fact, the results of that test will most likely not change my protocol, it will just scratch our itch to learn more about the virus.

How to Take Action:

1. Read the other posts in this series for more information:
Post #1: Is It Epstein-Barr Virus Reactivation?
Post #3: My Epstein-Barr Treatment & Natural Healing Protocol
Post #4: Update: Healing from Reactivated Epstein-Barr 
2. If you have an autoimmune condition or low thyroid and suspect reactivated Epstein-Barr, find a naturopath or doctor who specializes in functional medicine and ask for an EBV test. (See notes above about how to ask.)
3. Share your story with us in the comments below to help other people who are dealing with this. Have you had any testing, or do you plan to? What were your results?
4. Come back next week for the third post in this series to learn more about my natural treatment protocols. Since modern medicine really doesn’t know of any specific treatments for EBV, I’ll share the natural antivirals and protocols that my doctors have recommend in case they help you, too. You can subscribe to my newsletter here so you don’t miss it.
5. Stay positive!

It actually doesn’t matter that the testing can be confusing. You can still take charge of your own health. If you feel rundown or low in energy, stay hopeful. Living a healthy lifestyle and incorporating natural antivirals into your routine can help manage (and potentially even get rid of) the virus. I’ll continue to write more posts as I learn more (trust me, I’m typing as fast as I can). ;) For now, check out posts 1, 2 and 4 (linked above).

Wishing You Well,

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43 Comments...
  • Jayne

    Hi Totally interested Im.doing Anthony Williams Life changing Food book.. an it’s saving my life..I have now realized I’ve had chronic Ebv whole life bad after 30 an new strains too. I have bern thru so much I could right a book lol I researched 9 countries an then also find medical medium an he really put it all together..Its out now China realizes 7 cancers from ebv.I have had non Hodgkin’s.so much more an its all right there in his 4 books.my whole life an friends an family.!! .Its so true like research says we r in a 95% epidemic of Ebv Strains..other countries it’s even worse an kids die at 5 or younger from ebv….Grants are flying out for race to vaccine that won’t work Its the right foods that will save us eaten all the time…..Beat it ebv strep etc down into a hiding remission…Just in 10 months flowing Anthony’s books.I stopped 13 years of immune infusions.an I’m.fighting off colds etc too.my blood pressure went from.sky high too perfect 127/ 70….. ..16lbs melted off no extra exercise..ebv was so bad I was so sick.. hair loss .u name it I had it.plus strep an shingles too.now 138lb. Not bloated ..way better ..healing first time in 30 years.I had given up.alot of food after cancer..an I believe thru recent years gots others ebv strains….strep…more people need to gasps it’s serious..I totally get it now..I see the whole picture..I wish I love an healing to you….Im going to continue to follow Life Changing Foods..its truly saving millions..totally get used to celery juice!! Lol

  • Hello Elizabeth-

    Please help if you can. I was told I have Chronic Active Epstein Barr, and from my research it appears to be a very grim diagnosis. I’m looking for answers and a way to prove this wrong. My labs last week-

    EBV Early ANTIGEN Ab, IgG >150.0 (positive shows as >10.9)
    EBV Ab VCA, IgG >600.0 (positive shows as >21.9)
    EBV Nuclear Antigen Ab, IgG >600.0 (positive shows as >21.9)

    Also, thank you for sharing your wisdom. I’ve purchased the supplements you recommend in hopes of slamming this virus back down.

    Thank you!

    • Hi Tina, I’m not a physician so I don’t give people feedback on their numbers. I recommend that you continue to work with your healthcare professional and continue to do your own research (we are always our own best health advocates!). I also recommend the book The Medical Medium and finding a naturopathic physician or medical doctor who specializes in functional medicine. Wishing you well! ~E

  • Tracy Gaschler

    What natural anti virals are you taking?

    • Hi Tracy, you can read about everything I take in the 3rd post in this series, it’s linked above. (My comments don’t allow links so I can’t link it here, but go back up to the post and find post 3 called “My Epstein-Barr Treatment & Natural Healing Protocol” ~E

  • Sherry

    Thank you for the information on EBV I have had it for 11 months now. Started having Tremors about 3 months ago. My thyroid is also been found low too. But I am so tired and I am 59 years old. Ready to be well. I want to get well🙏🏻 Will be seeing a Neurologist for the Tremors in March.

  • Taylor

    I think this article is great – I’m sending it to a patient who is just starting working with me (who has both CFS and we detected EBV) to just show that this is quite mysterious, and the point is to keep working on it. I think it shows that first off, no practitioner has this “figured out”, everyone is different but it’s important to test, re-test (the same values), and continue working on the root cause.

    I will mention that for ME working with people (everyone practices differently of course) I like to see the IgG markers more than the IgM, because it shows more of that “chronic” activation. Examples:

    EBV Ab VCA and/or EBV Nuclear Antigen, both IgG.

    But great blog, great post, great site, great job keep it up!!!!

    • Hi Taylor (Dr. Taylor?), Thanks for your comment and kind words. My MD agrees with you and prefers to look at the IgM, but there’s so much confusion even around testing that I mention both since that’s what some practitioners have ordered for me. Glad to have you here! I always appreciate input and comments—we all need as much info as we can get. ~E

  • Hi there. I can so relate to your story. I had mono twice when I was young. The second time was very severe and was in the hospital with it. In the past month I think I have reactivated Epstein-Barr. My doctor ran blood work including the mono test. Which came back negative. Is this different that the reactivated EBV rest? I’m trying to navigate this but it’s extremely difficult and just want to feel better.

  • Thanks so much for sharing pieces of your journey. Just got the ELISA EBV testing done and am anxious to get it back. How’s your journey going? Have you retested your IgG to see if the levels have come down at all? Are you also following the medical medium celery juice “protocol” ha, don’t know what to call it.

    • Hi Des, I had an EliSpot EBV test a few months ago and plan to write the 4th post in this series soon! I’m feeling pretty good these days but my body is still actively fighting the virus. I haven’t completed the full protocol yet but plan to. Stay on my email list for updates :) ~E

  • Erika Gibson

    I have cried several times reading your story. It felt as if you were telling my story. In 1995 I was taken to Texas Children’s Hospital by ambulance for severe infection of mononucleosis, strep and tonsillitis concurrently. I was 16. I also contracted hep b while in hospital. I was a very sick young girl. I too didn’t get it from kissing boys, but by stupidly drinking after a friend who had just “recovered” from mononucleosis a week or two earlier. Had I known that ONE terrible decision would effect the rest of my life I would have most certainly resisted taking that sip! I too never got over the symptoms of mono and was in and out of doctors offices all the time for strep and tonsillitis. I honestly don’t know how I ever even graduated. But I did. At 19 I had a tonsillectomy. At 22 I had an appendectomy. Life went on and I had all but forgotten what “normal” was supposed to feel like anymore. My normal was as good as it was gonna get. By 28 new symptoms were emerging and I was losing lots of hair, gaining weight and constipated for the first time in my life. At my mother’s suggestion, I saw an endocrinologist and was diagnosed with Hashimotos when I was 29. I too was astounded that my body was attacking itself! Started thyroid medicine and symptoms somewhat improved but never fully go away. In 2011 my gallbladder was removed while I was 7 months pregnant. In 2013 I had pancreatitis with my second pregnancy. In 2017 I convinced my endo to let me try Armour. So far that has been the best medicine to treat the Hashimotos with the most “diminished” symptoms. Hey, I’ll take any positive that I can get.. this journey has been exhausting and obviously never-ending. This past June I suffered a graphic loss through miscarriage at the age of 39. After that loss, I discovered that at almost 4 months later I was still (and had been the whole time) suffering from chronic pancreatitis once again brought on by pregnancy. Although this loss was very painful, it has certainly provided some long lost answers to my many questions about my health problems and journey. Thus leading me here to learn about this EBV thing that has obviously been wreaking havoc in my body for the last 23 years. For the first time I finally have a explanation that makes sense! I can hardly wait to find a doctor to test me for this. Finally after so many years, I’m finally onto something big here. I hope and pray I can once and for all find the true healing that I’ve been desperately searching for. Thank you so much for sharing your story and journey. Xoxo

    • Hi Erika, thanks for sharing your story with us. I know it can feel frustrating, but keep believing in yourself and continue to research and work towards feeling better. I wish you tons of healing! ~E

  • Sarah Ventola

    Hi. I live in Seattle and am struggling with many symptoms of EBV and believe it is now in my central nervous system. I have implemented a clean eating and supplements protocol per Anthony William but need some medical support at this point. Would you be willing to share the name of your naturopath in Seattle? The one I am seeing is not open to EBV and is not trying to help my new symptoms. Thank you for sharing your story it is so helpful!!!

  • Hi Liz!

    Thanks for sharing your health journey with low thyroid and EBV! I’ve recently been tested here in Canada and found out that I have EBV reactivation. I didn’t recall even ever having mono but this new information makes so much sense – I’ve been dealing with severe mono like symptoms for well over a decade! I appreciate you sharing all the testing options and your protocols! I feel extremely fortunate to have all of your experience and protocols as a reference! Thanks again for sharing and for all the support!

  • Jessica

    Hi Elizabeth,thanks for the info I’m actually planning to go for a test I’m super exhausted regardless of what I do to rest,my thyroid levels are normal except for the antibodies which are not so bad. I hope I get answers it’s frustrating to always be tired.my vitamin levels are also fine so I’m suspecting ebv or sleep apnea.stay blessed

  • Brigid Filmer

    Thank you for these posts! I just got my lab results back and my EBV VCA IgG number came back as 214. I too got mono at 18 in college and never felt the same again. After the freshman mono, I would get horrible throat infections at the end of every semester. They would get so bad that I would end up in the college infirmary. My parents would have to come pick me up and load me in the car to get home for the winter/summer break. My grandfather was a pediatrician so he would prescribe antibiotics ALL THE TIME! Over the years the throat infections slowed down but I never had any energy. I was a personal trainer for few years after college. I remember feeling exhausted everyday even though I was exercising and eating healthy. If I had 20 min between clients I would find a quiet place to lay down and nap. I would take 2 to 4 naps a day. Skip to my 40’s, married, two young girls and my thyroid becomes a mess. So here I am, now on an antidepressant, anti anxiety, T4, T3 and oral hydrocortisone for my non existent adrenal glands. I am so glad that I took this test and am now scheduled with a naturopath and nutritionist to come up with a plan. I bought the book you recommended and will for sure look at your protocol. I think I was confused that it could ever be EBV because sometimes I would have ok energy to live life. It makes sense now how symptoms come and go. It also probably explains why I got shingles at 38 years old and why I get a cold sore every time I exercise. Thanks for your time and effort writing your story. It is obviously been very helpful!

  • Denise I Pierce

    I have almost the same history as yours. I am also from Montana. I am just beginning the journey to finding a doctor that will listen. I believe I am right now struggling with reactivated EBV. My last reactivation was in 2016 and I had Mono when I was 17. My VCA IgG levels were 497 in 2016 and 278 now, VCA IgM was negative on both, Nuclear IgG 98 in 2016 and 103 now, and the Early D IgG was 33 in 2016 and 36.9 now. I have low level symptoms this time so far but in 2016 I was barely able to function. Any suggestions?

  • Big Red

    I have recently tested positive for chronic active ebv. I have not been well for over five years, not able to work for the last four. I have gone the rounds of doctors, both medical and allopathic. How could I have gone so long without an accurate diagnosis? I had been told more than once that it was anxiety (which I knew it was not).
    I eat organic and live a clean lifestyle. Over the last few months, I had felt as though I had improved and was functioning at 80% of my former health level, but I could not seem to break through; it was as if something was blocking my healing. Then my health again took a nosedive. I needed to start striking conditions off of a long list of possibilities and asked my GP to test me for EVB (It just happened to be the top of my list.) She ran all three tests and the results were all positive and very high.
    I have been thrilled to learn of this diagnosis and am so relieved to learn there is hope that I may feel good again. I am currently learning all I can about a virus, until two weeks ago, I never knew I had.
    Thank you for your guidance.

  • Marcia Peers

    I have EBV. I live in a Small, Rural Farming Community in Far, NE Nebraska where there is only Primary Doctors!! They have No Idea what to do with me!! EBV Ruptured my Spleen. I was Misdiagnosed as having Constipation in the ER. I was Screaming in Pain, Coded 3 Times, Air Lifted to a Trauma Center and had a Spleenectomy. THERE,,, Problem Solved!!!! Only it is Still Killing me slowly!!! They have No Idea what to do. I am 59. I am very Ill, #108 which is very Low for me!! When is IT Enough?? I Can’t go on living like this.

    • Marcia have you checked out the work of Anthony William’s? His first book has helped so many friends of mine with EBV and his new book out called Liver Rescue is amazing. He has a 9 day sage detox for the liver and supplement dosages if you have a viral liver issue which most of us with EBV have. Check out his medical medium Instagram page and all the healing testimonials. All the best on your healing journey.

  • Laurie

    I was tested for EBV twice in two years, and the results are always the sane. IGM negative, but IGG for early antigen 150, capsid 750, nuclear 600. My doctor thinks this is a good thing?!?! I also have anaplasmosis, mycoplasma, off thyroid levels but always barely in range. Adrenal fatigue, DHE A & testosterone very elevated. An I crazy thinking the EBV numbers are way too high? Thanks!

  • Rachel

    This was a super insightful post!!! I had mono when I was in highschool and have never felt that I’ve recovered from it, so like you mentioned, I don’t feel it’s “reactivated “, rather that it never deactivated!! I’ve been bouncing between doctors for the past 5 years using “trial and error” to solve the symptoms that plague me (besides Epstein Barr I was also diagnosed with Hashimoto’s and Celiac disease) I have been eating AIP/Paleo for about 3 years and have to be very strict, otherwise I will have all kinds of reactions/symptoms.. :/ I am doing research on whether or not you can actually kill the Epstein Barr virus…as it almost seems it is something that stays with you for life, no matter what. I’m wondering jf the reason the virus is running rampant is due to a weakened immune systems inability to control and inhibit the virus.. So, I am curious if the key to focus on is not so much how to kill the virus but how to strengthen the immune system??…doing both simultaneously would be perfect! 😄 Have you done any research on ozone (autohemotherapy) or neural therapy ? Ive been researching them both and am curious what your thoughts are. Also, I also have been in contact with Sanoviv and have been seriously contemplating visiting them…. I’m just not sure if it is worth it…if they’ll truly be able to help me. I’ve tried so many things that haven’t worked …. putting so much time, money, and effort into something that doesn’t help is so frustrating and exhausting.. so, any insight would be sooooo incredibly helpful and forever appreciated!!!

    Xoxo
    Rachel

    • Hi Rachel
      Check out Anthony William’s work and his books. He is changing the world with his healing insights.. Hos Instagram page is filled with stories of autoimmune diseases and one healing story after another. Your paleo diet is not doing you any favours. As Anthony says these high protein diets are also high in fat and burdening the liver so it cannot help you heal or detox. It’s a trendy diet that has helped people only to a certain point because it cuts out processed foods but then the healing goes no further. Check out his Liver Rescue book. Its amazing.

  • Jacqueline Ledy

    Hi Everyone,

    A few months ago Epstein Barr Virus came up along with Cytomegalovirus, underactive thyroid and in pre-diabetic range. Also, I had a couple of cycsts on my ovaries and my testosterone is below normal range. I went to soooo many doctors the past 3 years, including sleep specialists, psychiatrists, Endocronologists, gynos, Autoimmune specialist, Accupuncturists, energy healers. I have tried soooo many diets most of my life, desperate to increase my energy and get rid of my brain fog, muscle soreness for no reason and other symptoms. I’ve always considered myself a healthy person. I don’t eat garbage and I work out. I take vitamins and herbs…

    I had mono at 15 and I started getting strep throat often for a few years after. I’m 37 now. I have been struggling with extreme fatigue since I was 15! I have been on and off Adderall, diet pills, loads of caffeine… any upper I can get my hands on to get me out of bed most of my life. No one had answers until now. I also would get Candida a lot, which is weird because I’ve always tried to avoid sugar (including fruit). I could go on and on and on about my struggles and how many things I’ve mess up or missed out on because I was too exhausted and felt like a vegetable.

    The only person who has given me any insight as to what is the cause of my symptoms and what the hell Epstein Barr Virus really is, is Anthony Williams (Medical Medium). I got off my thyroid medication I was taking for (5 months). I got off Adderall one week ago. I’ve adjusted my diet an a big way. Fruit is number one, followed by veggies. I’ve never had so much fruit in my life. I will never again do paleo, keto, bullet proof or any of the other diets. Please please please check him out. His Instagram. He has a podcast on SoundCloud. I’m still tired and I have a ways to go but I difenintelh feel a huge difference and I will be getting follow up blood work in the months to come. Epstein Barr wasn’t even mentioned to me by my primary physician! I double checked my own blood work. Make sure you have access to all of your blood work online or however. Also, (ladies) try to get female doctors. The men I’ve had are so absurd. I’ve been told to “ just work out more” when I can barely get out of bed. I’m 5’9, 120 lbs and I’m skinny fat but I’m not overweight. The thyroid medication made me loose weight (I went from 140-120) in a couple of months. Now I’m being told to eat potato chips for the sodium! Lol. So dumb. In my experience, women understand tiredness and will actually listen. I hope this helps someone. Check out Medical Medium

    • Thank you for your post Jacqueline. I couldn’t agree with you more re: Anthony William. What a godsend he has been with autoimmune issues and the only one that has ever made sense. His celery juice and heavy metal detox smoothie has turned my life around. I don’t bother with anyone else for advice and realise they are running on theories. The paleo/keto theory has been so detrimental to healing. Am waiting for the fallout in a few years from the keto diet. No consideration given to the liver in this diet. Am almost finished reading Liver Rescue. What a revelation.

  • SAH_2018

    Hi! Stumbled upon this trying to do some research. Just got lab results back from Dr yesterday diagnosis is active EPSTEIN-BARR virus. They tested EBV Early Antigen AB IGG and it came back at >150.00 (>10.99 is positive). Also tested EBV VCA IGG and it was >750.00 (positive is showing at >21.99). Looking for any advice to be pointed in the right direction. Only recommendation from Dr was to take FMLA and “sleep”. I’ve felt terrible for so long, there has to be something else out there that I can do. I just don’t know where to look. There is SOOO MUCH conflicting information online, I’m lost. Again, and advice, tips, literature, types of Drs to seek out, etc would be greatly appreciated

  • Loren

    Hi! Thanks for your post; I recently got a test with very similar results to yours, with a number value for my antibodies at 45. Did your doctor tell you that meant it was active? I’ve been sick but my doctor claims that is a normal number. Thank you!!!

  • Jen Ward

    I am a Health Provider in Oregon (Acupuncturist, Health Coach, Ayurveda, Functional Medicine) and share a similar story to yours in my teens. In this decade after going through Chinese Medicine school (an oh so stressful time) and then getting bit by a tick a year later (and two other stressful events) things were never the same: weight gain, changing thyroid levels, unexplained nerve pain, etc.. etc.. Every provider, EVERY provider just wanted to treat my Thyroid… so I persisted to find the ROOT. It wasn’t until I read Thyroid Healing book that I started to think about EBV. So I finally got the results just TODAY: “It shows you have recurrent chronic epstein barr virus.”

    Excited to read your posts and begin implementing Thyroid Healing book recipes etc., up my Acupuncture visits, add more Herbals and take a long look at my work/life balance. I have been following you for quite some time (I am IIN Grad 2002) and I glad you are putting this information out there. As I educate myself I will continue to educate my patients. As a Health Professional it’s crazy what I had to go through and if it was tough for me to get to this place Doctor after Doctor with all this knowledge, it’s definitely tricky for the average person out there!

    Cheers, Jen W.

    • Hi Jen! Thanks for sharing this, and grateful to have you in our online community. EBV is coming up more and more and modern medicine is just starting to learn more, so we’re all in the learning process together. My own functional medicine doctor just mentioned how modern doctors (even the progressive ones) are having to shift to thinking about EBV more like the way they look at chicken pox and shingles (that it can recur). They were all taught that everyone gets EBV and mono once and then it’s never an issue again. I just had an Elispot test (most sensitive available) and it confirmed the active EBV (I half expected it to be negative.) I’ll update the blog soon with more on that test—I’m still learning more. Again, thanks for being here! ~E

  • Hi Elizabeth! Linda here. I read your three blogs about EBV. I finally found my records.

    On 7/6/17 my test results said: EBV Early Antigen Ab, IgG 56.9 (should have been 0.0-8.9

    The EBV Ab VCA IgG was below 600, should have been 0.0-17.9
    EBV Nuclear Antigen Ab. IgG again, below 600 Should have been 0.0-17.9

    On 10/5/17:
    Early Antigen Ab, IgG 53.4

    The next two, like the previous readings were the same, below 600.

    When the doctor looked at this, he just said the tests are not always accurate but that I definitely had EBV.

    I am pretty sure I still do, and if you read the first Medical Medium book, I think I have stage 4, as I believe it is in my nerves. Lately my pain is better, but I know I am not 100% yet. I see the doctor on Friday and I am still on the same thyroid dose. I don’t feel like I am ready to lower it yet, unless I am dealing with liver issues as much as thyroid and EBV. I haven’t seen him for 9 months/ Anthony William had said that sometimes it can take up to year or more to see results when you begin to eat right for EBV. Thank you for your articles!!! I think there are many more people than we realize with the same issues. I am following Medical Medium protocol as much as I can. It makes sense to me that the way to kill the viruses is to take away their food supply.

    Linda

  • Linda

    Dear Elizabeth,

    I also have low thyroid and EBV. I am seeing an Internal Medicine doctor who told me about Medical Medium and had me get his books. WOW! Makes sense. I am having a very difficult time with eating vegan. I like meat, fish. I really don’t like chicken or turkey, so that is a plus. I tried the 28 day diet, and can’t even go one week without cooking something. I know it is ok to cook, but it is better to eat raw. I have tried some of your recipes and love them! Thanks for the positive attitude! Such a help!

    • Hi Linda! So glad you posted this comment. Raw isn’t always necessarily better. There isn’t one specific way that is best, not for one person and not for an entire lifetime. It’s common and natural to eat different ways in different seasons of the year and different seasons of life. Raw food has a ton of benefits, but don’t feel guilty for eating cooked foods! You don’t have to label your eating habits. I eat mostly vegan too but also incorporate eggs, fish, turkey and chicken because I feel better when I eat them. You don’t have to be 100% of a certain eating style. In fact, this is the premise of my book that’s coming out next year (Hay House 2019) :) Glad that this post helped you, and glad to have you in our online community. ~E xo

  • Elizabeth, did you know that The Medical Medium published a book last November titled Thyroid Healing? You might want to look into it and see what you think.

  • Is this test only for people with low thyroid problems? My thyroid is normal, but most of the time I feel tired in the morning.

    • Hi Zee, great question. People can have EBV troubles and symptoms without thyroid issues, so it may be something you still want to check out. The book The Medical Medium has great info on this. ~E

  • Leanne

    Thanks Elizabeth for sharing this info. I too was recently diagnosed as reactivated EBV. Thankfully I am working with great functional medicine practitioners, but it’s still frustrating. I would love a quick fix to get me back to feeling 100% right away, but realize this longer drawn out process is making me learn to take better care of myself. Look forward to hearing the suggestions you received and to see if they are different than what I was told.

    • Hi Leanne, I totally feel you on this. There aren’t any quick fixes, but there are things you can to do feel better. More coming in the next post. Wishing you well! ~E

  • Stephanie

    When I read the Medical Medium book my jaw dropped. I felt the truth in that book about EBV! I had been bed ridden for a month when I was 15, and my mom always said I was never the same. And I haven’t, and right now I have been diagnosed with Mental Exhaustion and as a Holisitic Nutritionist, I have observed that I have all the symptoms of stage 4 Adrenal Fatique.
    After reading the book and hearing another woman’s story about getting tested again for it and clearing the symptoms I went to see my doctor (regular MP) to ask for the EPV test. She thought I was crazy because she said my EPV would be dormant. I don’t know if it is the same tests as you, as I don’t think it was, and she told me it came back negative, but I don’t feel that is totally correct.
    Thanks for sharing! I will seek out a functional practitioner willing to help me investigate!! I have been suffering for too long! ~ Steph

    • Stephanie, yes! Life it too short to suffer for so long. So many women share this same story. I’m glad you’ve read the book and plan to seek out a functional practitioner. Keep us posted! Sending you healthy vibes, ~E

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